I miss our phone talks big sis :hug: .I know you are having a bit of a bad burning ,pain spell and you have pre op apt and other things going on right now.
so if your body says its time to have a lazy do nothing but rest day ..then I hope you do just that. Take it easy.I am really sorry the block didnt help this time :( but soon you will have B.B. (your stim) and all this will be behind you. the day is getting closer so make sure you take care of you!
We will chat soon. until then I hope you feel these low pain wishes and prayers for time passing quickly and the final implant of the stim to be successful.
:grouphug:
stay positive and know your in my prayers thoughts always :hug: .
PEACE
BMW & T-Rex

Hi all,
Thought I would just make a note that this coming up week is me getting ready my house for comfort while I recover from my stimulator surgery. You know those last trips to the grocery store.....have to have enough pop, candy, chips and all. Preparing the couch and tv and remotes all in arms reach. I am sure that my arms and chest will not work real well as the generator will be in my chest. That just seems so weird. The surgery date is Aug 5th. So just checking in. Take care of your selfs and will write soon on the main stimulator site.
Cheryl

Cheryl,
You are almost there - I will be cheering for you! :hug:
take it slow and easy...it's sometimes the hardest thing to do, and sometimes just not possible. But try to as much as you can. Wish I could help and run to the store for you. I'm getting a sample of how one feels after the leads come out too, so I am having to listen to my own advice! And why does my NS always have to mangle my hair?!? :p
Hope you are feeling ok today,
Lily

Hi Lily,
I had the same problem. My leads got all tangled in my hair. I almost tore one lead right out because I thought is was a hair. So, are you in good shape waiting for your approval for your permanent? I hear the permanent will work better than the trial. How long do yo think it will take to get your final approved. It took mine one month. Seemed like forever; but only a week away. I wish you could go to the store for me too. You would get good healthy food. I would buy junk food. Hang in there with you pain. Keep your mind busy on something and the pain does not seem to be as bad. I started a new thread. Kind of a journey and a journal. Take of you my dear
Love
Cheryl

Prayers for upcoming TN implant
 

Cheryl- What a blessing it was for Cleo and me to actually get to meet you in person the day before yesterday! Imagine talking to folks all over the place here for support and caring only to have one of these brothers and sisters in your own backyard! Wow! We know it was a struggle for you to make the rendesvous with us, but from our perspective it was well worth it. Yep!

Now to the surgery this coming week. We will be there as planned to both pray you into the OR and to meet your rep to see your remote, if only to be able to talk more informed when we speak on the "other side." Pretty exciting isn't it? After my stim Trial, there was not one bit of hesitation on my part, I wanted this device restored to my body on a permanent basis. Hoping and Praying that you will find your permanent experience to be so beneficial as well even though you are filled with statistics on success rates and benefits. You CAN be the one who sets the next level, you know!

It'll be cool to get to meet your son and daughter as well if they are on hand then. Lookin' forward to it!

Hey BMW! I miss hearing from you lately!! Hope all is well with you and look forward to Rae's next party in the chatroom to hear the buzz about PJ, her new foal.

ASAP!:smileypray:
Mark56 PJ :)

:sing: We are in the final count down.. Tomorrow and Wen .. then
Thursday is the Big Day .
I know your having a difficult time with the burning pain and also the medication changes . Your in the very last days of waiting. You are a trooper for sure !
How neat it was to hear You met with Mark and Cleo and that they will try to be there on the big day.
Just stay busy getting things cozy for a few days of recovery and rest. But dont over do it . Take care of you.
Sending prayers.
http://i294.photobucket.com/albums/m.../praying-1.gif
:hug:
:grouphug:
PEACE
BMW

Good Luck Cheryl! You are almost there! I am so excited for you - you have had to wait a long time for this, and you are now in the home stretch. Eat healthy, exercise if you can, and take care of yourself. You will be in my thoughts and prayers on Thursday - I hope that you wake up and can get 'buzzing' right away.
Hugs, :hug:
Lily

Blessings Coming!
 

Cheryl! Day after tomorrow! Almost here! We are pulling and praying for you, and will see you that day for prayer before you go in.

God be with you dear friend,
ASAP,:smileypray:
Mark56 PJ :)

Prayer for surgery
 

Cheryl,

My prayers will be sent from the north side of Denver on Thursday as you go into your surgery. I will ask that the Lord take over the surgeon's hands during the surgery.

Take care, let go and let God!!

Emelie

Oh, thank you so much Emelie. Your prayers will be close by. Parker Hospital is a short journey for prayers. The surgery starts at 1pm and should last about 4 hours. Then my family and I ( but I will not remember ) will learn how to use the remote. Something interesting is my doc at our last meeting said that " when " and if, my v3 fails....like breaking or not covering well enough, he will go up the spinal cord like you had done. I think he contacted your doc as I asked him if he knew him. He did so maybe they got together about the procedure. It sure worked for you. What device do you have? Well, anyway, thanks for your prayers. I know that the Lord is in control totally. He know how to do the surgery and He will be guiding the hands of the surgeon. I can see Jesus standing next to Him. Thank God we have Him on our side during these times. Thank you for your note. Talk to you soon
Take care of your self
Cheryl

:hug: the last few hours before your final implant surgery .
You made it threw the wait.
Glad we got to chat on phone before. Hope you got all your errands done. You sound already to go have it done and get back home to cozy recovery bed.
Dont forget to enjoy a long shower or a bath. Relax . everything is going to be okay . I will be calling you tomorrow night for a very quick check up call.
I am lighting a candle and praying for / about you
http://i294.photobucket.com/albums/m.../addtoday8.jpg
... and Lily and lots of others.
Go to bed early sleep well tonight Cheryl . Maybe you can get up early and have a small drink if your allowed clear liquid.
so I found a few pic maybe one of these is B.B. :D
http://i294.photobucket.com/albums/m.../busy_bee-.jpg
http://i294.photobucket.com/albums/m...SSIC/bee-2.gif
http://i294.photobucket.com/albums/m...SSIC/bee-1.gif
Positive thoughts and prayers for all to go smooth tomorrow and all threw your recovery and healing.
PEACE
BMW & T-Rex http://i294.photobucket.com/albums/m...-rex-dance.gif



I have been zapped out lately The heat has been :thud: far past the "dog days of summer". Sure do Think I have turned into a hot grumpy tired anti social monster , :sorry:



busy bee is waiting ... http://i294.photobucket.com/albums/m...LASSIC/bee.jpg

Almost Home
 

Dear Cheryl- You are almost there, almost home, in the final stretch and all things will come together for you. Tina did such a beautiful post {WOW!} My follow on is just that we will be there to pray for you before going in tomorrow. We pray that all will be well and that your means to best pain management will be in your hands and frame tomorrow night without complication and without infection.

Lord, we pray all of these things,:smileypray:
ASAP,
Mark56 PJ :) and Cleo

Type of device
 

Cheryl,

I am so glad that my experience can be used to help you. I have a Boston Scientific stimulator. I have met with three different reps and they have all been great!!! I had my six week follow up visit yesterday and not do not have to return for three months!! What will I do if I don't have to go to University several times a month??

Take care and remember to keep breathing!!

Emelie

Tina
You are something else. The pictures made me laugh. Where do you find such cool stuff? Of course I do not mean to leave the angels out; but the bees just was perfect. Thanks for having our early morning talk today. It helped a lot. I know you say that I will be fine and I pray that is true. Just something that I did not expect. Keep the angles around me. Now, for the important stuff. T-Rex in a few hours will have a cousin. It must be from the "other side " of the family as T is a medtronic and Busy Bee is an ANS. I sure they will get along fine. We all know that T will always win. His Mom is strong as hell, and busy bee is this kind sweet little thing that will just buzz around the leads for fun. So, in advance Busy Bee sends her love and asks that you tell T hello for her. She will be resting tonight in her new home ( warm and cozy ) getting used to her new environment. PJ will be praying for her and yours. So, I am off to the tub, with candles, etc to soak the stress away. Thank you again for listening this morning. And of course your encouragement. Love you and talk to you tonight.
Cheryl

Your are probably in surgery right about now ..May God and the angels be there with you and the team of surgeon doctor nurses and the rep . May God and the Angels provide protection, strength comfort and guide each of yous threw a successful surgery and to everlasting pain management with this Stim "B.B."
We will talk later. :hug:
I just want ya to know I am praying and thinking of you . Wish for this surgery and the healing be smooth fast and very successful way to manage the pain.
:hug:
PEACE
BMW

My thoughts are with you too, Cheryl, and I hope by now you are resting up nicely in the hospital, and maybe even doing some programming with the rep. Take it easy, and we will see you soon. Praying for big relief for you! :D
Lily

Well....it is time to put this thread to bed. I have my stimulator and it is wonderful. All the TN pain is gone and the AD pain is gone when the stimulator is on. You need to follow my story on the top thread above starting with Stimulator. There are pictures, etc. It is a long story of pain and suffering. Starting with trigeminal neuralgia, having gamma knife, having the mvd surgery, lots and lots of drugs, patches, a basket full of meds. I now have the stimulator in as of yesterday. It was a long surgery, partly awake a times so I could communicate with the doc, being totally out to make incision, and pocket for the generator. I will all worth it. It is controlling the pain So, of you have TN or AD and is struggling, let me know and give me your email and I can be there for .
Take care of yourself,
Cheryl

YOU MADE IT SISTER ! :D


Yes it is time to turn the lights out on this thread.
and I have been known to be the wonder thread police on more then a few dozen occasions, so have turned the lights out on many threads in another forum here at neurotalk.
and this is how BMW turns out the lights on a thread ...

a prayer for Cheryl to continue on a direct course to healing and life long lasting pain management with the PNS ( "BUSY.BEE" ) .
A prayer for the room and the readers ... May God be with each of us providing strength protection and comfort to help us threw our daily and life long challenges. Thank You God .

this thread is done .
I am turning the lights out . police girl to base ,you copy 10 - 4
http://i294.photobucket.com/albums/m...olicewoman.gif

get patrol set it is lights out.
http://i294.photobucket.com/albums/m.../Policeman.jpg
move along now it is lights out.
http://i294.photobucket.com/albums/m...hakinghead.gif
no more posting the lights are out
---------------------------------
PEACE
BMW

Hi Cheryl,

Hello. Thanks for your help.
Dot

Write me a ticket Officer Tina!
 

Har Har-

Here I go posting a Hope YOU are doing very well to Cheryl aka Calewark!

No pain for you, OK?
ASAP,
Mark56 PJ :)