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-   -   Motor Cortex Stimulation for Atypical Facial Pain (https://www.neurotalk.org/trigeminal-neuralgia/128149-motor-cortex-stimulation-atypical-facial-pain.html)

Burntmarshmallow 08-28-2010 11:29 PM

You have been in my thoughts quite a bit lately Legalady
I know the surgery date is getting closer and Just want you to know all of us here are thinking and praying. keep us posted on how things are going and how you are.
Sending strength positive energy and blessings :hug:
PEACE
BMW

Mylastnerve 08-31-2010 09:58 AM

Dear LegalLady,
Before I go out for my own surgery, I want to wish you all the best with yours! I pray that it all goes well and that it is complication-free. You will be in my thoughts and prayers.
Take care, and big hugs! :hug:
Lily

Burntmarshmallow 09-08-2010 04:41 PM

Quote:

Originally Posted by legallady534 (Post 677113)
I'm happy to share my story and all I've been through, up to and including MCS. I'm so excited to finally be getting this surgery - allthough the PNS was helpful it didn't touch my deep pain. Niki and I have emailed, and she's def been helpful. My MCS surgery is september 7th, and I'll be in the ICU for the whole trial until sept 14, when hopefully they will implant the permanent system. If it didn't work well, they are going to implant a permanent PNS system. Please feel free to ask me any questions!


----------------- -------------------- ------------------------
I have you in my positive thoughts and many prayers for you ! :hug:
I know it will be a good bit of time now before your up to being back on the comp:hug: during that time I pray God and the angels guide you and your family threw this . sending comfort strength and the best.
PEACE
BMW

p.s. I watched the show, prime time "secrets of your mind" t.v. show last night
They had a woman on there that had deep brain stim surgery for her eating and weight. was very interesting as they showed parts of the surgery and her awake as they positioned the leads and programed the stim.
I believe deep brain and motor cortex are very close to the same . My blessings and heartfelt positive prayers are with you and your family for this to be successful.

legallady534 09-12-2010 07:30 PM

Hi everyone...thanks for the thoughts. Lily I'm looking forward to hearing how yours went. Mine is this Wednesday in Michigan. Ill let everyone know how it goes!!!

easygoing 09-13-2010 04:51 AM

legal lady,

thanks for your story to date. I want you to know I am sorry for your horrible problems, but I am very glad you are sharing.
it helps me and other people with facial pain to read about other peoples experiences and treatments.

I will wish you good luck and will be thinking of you thru surgery and sending you good energy.

please post when you are up to it and let us know how things went and then when you are recovered, if you can, please share your experience with us.

thanks

Easygoing

legallady534 09-15-2010 12:14 AM

Well, it's the night before surgery and I'm laying here awake nervous as can be. I've been praying pretty much non-stop, and I know a lot of people are doing the same. I have the utmost faith in my neurosurgeon...just nervous about the actual surgerry itself. I will def give updates as I can and will post a thorough rundown of the experience as soon as I'm able. Wish me luck!

Mylastnerve 09-15-2010 10:15 AM

Dear Legallady,
You are on my mind and in my prayers today as you have your surgery. I know that even though Tina is taking a break, that you are in her prayers today as well - we talked about you yesterday. You are so strong and amazing - brain surgery is never an easy decision, as many of us know. Think of us all at your side, surrounding you with love and protection, as you venture forth.
Big hugs, and best of luck for a successful outcome.
Lily

legallady534 09-20-2010 10:20 PM

Well, the trial of my MCS was successful and I'm going in tomorrow for my permanent stimulator! I'm not going to lie, this process has been very painful but I'm confident the long term results are worth it. I'll post a more detailed description of my surgery when I'm more recovered from my final surgery tomorrow. Please keep me in your thoughts!

Burntmarshmallow 09-21-2010 06:30 AM

Tif, :hug:
I have you and your team of doctors and family in my prayers,positive thoughts and successful wishes.
:smileypray:
give your self time to heal take care of you ! I am sure you heard nikki has some sinus cold flu infection going on and stim isnt working so well at the moment but as soon as its cleared up things will be good again..PLEASE take care and try very hard to stay healthy ... no infections or colds. that is the biggest worry with your type.. motor cortex and with my pns . I ask God to protect you , carry you threw this final surgery, provide fast healing and a very very happy ending . Thank You God.
we are all right with you with prayers and in spirit Legallady:hug:
PEACE
BMW...Tina

P.S. I just came to retrieve some private messages and had to post to you :)
will be phone calling a couple of pals later tho... back to my time out/break.

Mylastnerve 09-21-2010 10:03 AM

Dear Legallady,
Yeah, My NS told me that at first with the Motor Cortex that it's hard to differentiate between the face pain and the wound pain. I hope that you have been adequately medicated so that it helps you past that hurdle. It's great to hear that you have all of that support surounding you - it is essential to have someone there to get you hot blankets and/or go on chocolate-pudding hunting expeditions.
You are in my prayers and thoughts. I hope that the haircut is not too extreme, although I have my doubts that it's a keeper.
Hugs :hug: ,
Lily


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