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Old 08-05-2010, 02:10 PM #1
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Burntmarshmallow Burntmarshmallow is offline
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Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
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I am meeting family .
wow we have lots in common as far as face,jaw issues. I am sure you have had your fair share of blender gack and of course the ever so nice shoving of medications threw the wires when jaw was wired. ha you know Pizza in blender is a NO no!
My lower right jaw is where my v-3-(lower branch of the trig nerve) snapped. I ended up with A.D. and a steel plate that is very close to the snap.
they told me give it a few months to calm down ..then it was try this med try that one . just growing worse the pain . allergic to anti seizure meds too.
so off to experts and referred to pain specialist had 2 options a pain pump implanted in back of my skull. first try morphine by i.v. but it did not help so was left with last option . the PNS / Neuro Stim . I have had it since July of 2002 . It gave me my life back. I work now and live a somewhat normal life.
I am NOT pain free ! I am just able to control the pain, manage the pain so much better with my PNS implant.
so can I ask what area are the worst?
for me it is the inside of mouth along gum line inside of cheek .lower lip chin lower right side of face and jaw. kissing is still not the funnest thing to do even with my pns.
Do you see a pain specialist or a neuro doc?? I WOULD NOT do motor cortex without first trying PNS !
here is thread from the top of forum explains about PNS, Neuro Stim.... it helps A.D. ,Bi-Lat ,Atypical ... O,.N. and MANY other conditions !
http://neurotalk.psychcentral.com/thread124048.html

I have lots of chores to do my friend BUT we must get to talk more !
Your not alone , There IS HOPE . we are all in this together and here to help each other find and keep HOPE. so we can get threw the days and nights the best we all can.
Glad you found us.
PEACE
BMW...Tina

P.S. I just emailed you.

Last edited by Burntmarshmallow; 08-05-2010 at 02:16 PM. Reason: to add PS
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