Hi everyone. I had the gamma knife and then an mvd last year. Everything was great for a year and then the painful stabs started coming back. I am currently on 1200mg tegretol, 200mg dilantin, and 900mg neurontin. I am waiting to have a radiofrequency rhisolysis procedure done. Has anyone else had this done and were you happy with the results?

Thanks,
Laureen

It causes Drowiness. I workout 3x a week so I take a pre-workout supplement which makes me energized and wide awake.

Cafeine is good savior but thats the only option.

I don't have the stabs or anything painful though.

Why did you have to have both type or surgeries?

Do you take these all at the same time? Which has the most drowiness?

Hi NT,
I had the gamma knife first after going through many painful tn episodes at home and winding up in the emergency room and then the hospital because the pain was so bad. After the gamma knife I was okay for 2 weeks and then the pain came back with a vengeance so they decided to do the mvd. Right now I take tegretol 4oomg, dilantin 1oomg, and neurontin 3oomg at 6:00a.m. At 2o p.m. I take tegretol 400mg and neurontin 300mg. At 6:00p.m. I take another 100mg dilantin and then at 10:00p.m. I take tegretol 400mg and neurontin 300mg. Whenever I add a new drug in then I have drowsiness and tiredness for the first few days, but then my body adjusts and gets used to it. That's why I'm having trouble with break through pain and why I'm going to have this new procedure done. I'm hoping to get off most of my medication but I'm worried about the side effects of the procedure.

Laureen

I tried neurontin, didn"t do well on it, made me too stupid

Just saw the pain specialist yesterday. He wants me to take 100mg of Gabapentin, 4 times a day plus he's adding Baclofen, not sure the dosage yet. Has anyone taken this mixture?? What can I expect??

Hi Jiggered. I was on 10mg baclofen 3xday along with 200mg dilantin, 1000mg dilantin and 2700mg neurontin last year before my mvd. The baclofen didn't seem to do too much to me except when I first started taking it I had bad dreams. You can apparently go up pretty high on neurontin. I think the max is 3600mg a day. My highest was 3200mg a day. All of that medication made me very tired and forgetful. Laureen

What do you do about it?

Anyone using just Carba?

Well, if I can take a short nap during the day I try to do that before the kids get home from school. The forgetfulness is just a daily thing. That is why I'm going to try this radiofrequency rhizolysis procedure so that hopefully I will be able to get off of all of these meds or a least cut down drastically.