200mg daily is such a low dosage. Do you get any side effects? For me its just Drowiness when I get to 400mg.

You have TN? Where is the pain exactly? I don't think I have TN though.

I have been on tegretol off and on through out my life for seizures. At 200 mg, I was less affected by side effects. At 400 mg, I was tired and began to gain weight quite rapidly. Since another medication is better controlling my seizures, I dropped teh tegretol back to 200 mg and seem okay on that.

Never had a weight problem.

Hi everyone. I had the gamma knife and then an mvd last year. Everything was great for a year and then the painful stabs started coming back. I am currently on 1200mg tegretol, 200mg dilantin, and 900mg neurontin. I am waiting to have a radiofrequency rhisolysis procedure done. Has anyone else had this done and were you happy with the results?

Thanks,
Laureen

I don't have the stabs or anything painful though.

Why did you have to have both type or surgeries?

Do you take these all at the same time? Which has the most drowiness?

Hi NT,
I had the gamma knife first after going through many painful tn episodes at home and winding up in the emergency room and then the hospital because the pain was so bad. After the gamma knife I was okay for 2 weeks and then the pain came back with a vengeance so they decided to do the mvd. Right now I take tegretol 4oomg, dilantin 1oomg, and neurontin 3oomg at 6:00a.m. At 2o p.m. I take tegretol 400mg and neurontin 300mg. At 6:00p.m. I take another 100mg dilantin and then at 10:00p.m. I take tegretol 400mg and neurontin 300mg. Whenever I add a new drug in then I have drowsiness and tiredness for the first few days, but then my body adjusts and gets used to it. That's why I'm having trouble with break through pain and why I'm going to have this new procedure done. I'm hoping to get off most of my medication but I'm worried about the side effects of the procedure.

Laureen

I tried neurontin, didn"t do well on it, made me too stupid