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-   -   What good are Neurologist for TN? (https://www.neurotalk.org/trigeminal-neuralgia/140589-neurologist-tn.html)

Meganmole 01-06-2011 09:33 AM

Neurologis
 
[QUOTE=NT User;726370]Almost nothing. They can do the same thing I can which is coming up with different prescription. I just need them to write me one.

Wedmd is your friend.Neurologist

You have provided me with validation. Every neurologist I see wants me to try meds that I have ready tried during My tn journey. I provide them with a long list of drugs I have taken but they put it a side.
Almost like If they prescribe the drug in some magicAl way it will work. They have no understanding of the fact I am working full time and the side effects of changing meds are a huge deal reflecting job performance.if they can't help me I wish they would just be straight with me and not expect
E to go down that road of repetitious treAtment. My psychiatrist has been the most helpful and understNding with treTment. Oh how j long for the pre tn days. Surgery Mvd was my downfall. The surgeon takes no responsibility for dAmage done. Left facial numbness, constant burning stinging pAin. He says the nerve will heAl. It has been 10 years. Please someone take responsibility. Please don't mKe me feel lime A malinger or a non compliant patient for not wanting to try the same thing over and over again.

NT User 01-06-2011 08:54 PM

They have a technician that does the testings which is great. Sometimes Neurosurgeon could be good for advice.

We all know there is 2 options :

1. Rx
2. Surgery

Surgery isn't the option for me since its not severe.

Right now I am on 600 Carbamazepine. I take 400mg before sleep and 200mg in the morning but causes enough Drowiness to take over my life. 200mg had no drowiness.

If they don't care about you then they are in just for the money. Do research first before seeing one.




[QUOTE=Meganmole;732151]
Quote:

Originally Posted by NT User (Post 726370)
Almost nothing. They can do the same thing I can which is coming up with different prescription. I just need them to write me one.

Wedmd is your friend.Neurologist

You have provided me with validation. Every neurologist I see wants me to try meds that I have ready tried during My tn journey. I provide them with a long list of drugs I have taken but they put it a side.
Almost like If they prescribe the drug in some magicAl way it will work. They have no understanding of the fact I am working full time and the side effects of changing meds are a huge deal reflecting job performance.if they can't help me I wish they would just be straight with me and not expect
E to go down that road of repetitious treAtment. My psychiatrist has been the most helpful and understNding with treTment. Oh how j long for the pre tn days. Surgery Mvd was my downfall. The surgeon takes no responsibility for dAmage done. Left facial numbness, constant burning stinging pAin. He says the nerve will heAl. It has been 10 years. Please someone take responsibility. Please don't mKe me feel lime A malinger or a non compliant patient for not wanting to try the same thing over and over again.


EE03 01-06-2011 10:22 PM

I second what NT said, do your research, but I say on the doctor. There are a lot of sites where patients rate them and that can give you some insight as to what they're like, to a degree. You can also add your experience if you're so inclined. I know the frustration of them wanting you to try the same drugs again, I've been there and done it and eventually, I've stopped seeing them because of it. Trying one med after another takes its toll on you and your life, all facets of it. Hang in there.:hug:

NT User 01-06-2011 11:45 PM

As far as interactions goes, I can do that research too.

Whats a good site that shows ratings and comments for doctors?

EE03 01-07-2011 06:08 PM

Quote:

Originally Posted by NT User (Post 732333)
As far as interactions goes, I can do that research too.

Whats a good site that shows ratings and comments for doctors?

Check out RateMDs.com
and here is another one I've visited too www.vitals.com.

There are several more out there but the first one I encountered is the "RateMDs" site. I don't know that any of these could be deemed as good, but they are another source of info.

NT User 01-08-2011 01:53 PM

Quote:

Originally Posted by EE03 (Post 732593)
Check out RateMDs.com
and here is another one I've visited too www.vitals.com.

There are several more out there but the first one I encountered is the "RateMDs" site. I don't know that any of these could be deemed as good, but they are another source of info.

RateMDs is ok.
Vitals has almost nothing.

sadiesmom 01-08-2011 07:14 PM

I am on Oxycontin, but need to change to something that is less expensive but still is strong. I take 100 mg of the Oxy twice a day plus 2 oxycodone 5 mg. for severe break-thru pain whenever I need it. I never have a day that I don't have pain constantly. Can some of you guys help me out with suggestions for cheaper meds?

EE03 01-10-2011 11:37 PM

Quote:

Originally Posted by sadiesmom (Post 732980)
I am on Oxycontin, but need to change to something that is less expensive but still is strong. I take 100 mg of the Oxy twice a day plus 2 oxycodone 5 mg. for severe break-thru pain whenever I need it. I never have a day that I don't have pain constantly. Can some of you guys help me out with suggestions for cheaper meds?

Are you taking those for TN?

kristina1998 01-28-2011 10:43 AM

hi, i am new....anyone have any tricks for bms esp outer lips????gum helps but not for lips.....also, anyone tried lyrica?????thanks so smuch!!

NT User 01-30-2011 06:13 PM

I found out from another Neurologist that I don't have TN. I just have Neuralgia and recommended that I see a Oral Surgeon.


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