Originally Posted by Smokey56

Chantelle,
I am a newbie today on this site as last week I was diagnosed with MS and still learning just what I am dealing with. Some great and comforting info on this site and I hope to contribute.
Last 3 or 4 years I had similar pains - it was center of sinus area to left ear and would come and go. Heat would trigger some of the time - my dr said sinus issues - so ate tons of meds with little help. I have fought allergies all my life so thought it made sense. Then the balance got so bad I would stumble and was miserable with face pain. My dr said I should see a shrink - huh, he thought I was faking! So, I changed Dr's and within 30 days new Dr ran a B12 test - came back I had very low levels that can cause a deadly version called Pernicious Anemia - I started shots and withing 2 weeks ( 1x a week ) my symptoms had just about vanished...
Now, got along good most of summer and last 2 months many other symptoms have surfaced which has led to MS diagnosis. However the face pain has been very minimal so I would check out the B12 test - simple low cost blood test and you might just get lucky as low B12 can cause symptoms very similar to MS and can cause permanent Neuro dmg...
There is a very good book called "Could it be B12" written by a California nurse - well worth the read...
Good Luck!
Randy

Originally Posted by Mylastnerve

If you look at an anotomical drawing of the trigeminal nerve, it branches out all through the nose - everywhere - my nose is one of the most sensitive parts of my condition. Any type of eyewear is unbearable. Regarding the astigmatism, I doubt that it is related. Many people have it. But I have to side with BMW - that statement is absolutely wrong.
Lily

Originally Posted by ch1984

Hi, I'm new here..

I haven't been diagnosed with anything as of yet and i'm so frustrated with going through whatever it is and trying to make sense of it all. I find the doctors of no help and waiting lists are so long.. here's my story i'd appreciate any advice or info..

Where to start.. I guess over 2 years ago is when things started getting quite intense.. all in all.. I have major pain and headaches consistently for over 3 weeks now, the frontal, maxillary sinus, a dull and sharp pain right across the eye brow around to the temple, and ears and cheeks. It can sometimes come from the back of my head around the ears..

It can feel like a pressure. Also slightly higher on the forehead if you went directly up from the end of eyebrow, my tears have stung me so badly for years, my vision has deteriorated from 20/20 to i'm not sure what but very dramatically and have astigmatism of the right eye.. my balance is gone, vertigo, if turn head too fast etc. (its better if turn whole body almost) i have been getting bad ear aches, a humming noise in my head, people saying i'm talking too loud or too quiet, i have a stuffy feeling in ears, also in the face like i've been punched around the maxillary area..

Another major point is that i cant be out in the air/cold for a few seconds before my ears start to hurt and glands feel like their going up.. even if have a shower and wash my hair my ears get sensitive, i feel like i'm getting a cold so easily.. its way too sensitive

I have TMJ symptoms, both sides of jaw click, my bite is a slightly off, i'm getting confused lately, poor concentration and also find it hard to walk/coordinate sometimes.. i have to think about it. I have a swimming pulsing/swaying sensation too.

My bottom 2 wisdom teeth have erupted but top 2 havent and are at a bad angle so wont come out regardless i dont think (thought i'd mention teeth in case, also need to finish a root canal) also my gums above my top teeth have this horrible feeling especially after eating something hot or cold.

Basically i'm feeling so rotten and hopeless and docs just say its the reminence of a flu i had in Dec but its been ongoing for years and really gotten a hold on me more so recently - since i had the flu..

Not sure if i left anything out but really hope to hear back from someone with any info or advice.. apologies for being scatty with info

Thanks

Chantelle

Originally Posted by sincerelykaren

Chantelle: With TN, you have electrical shocking, sometimes you can't even touch a hair on your head, eyebrow, etc., brush teeth, eat, hardly ever smile, other pains that shoot in your face, the pains are indescribable almost.