FAQ/Help |
Calendar |
Search |
Today's Posts |
03-14-2011, 08:57 AM | #11 | ||
|
|||
Junior Member
|
Hi
Thanks guys for your reply. I managed to get an appointment for an MRI scan anyway as i have many MS symptoms also. Just say i wash my hair and go outside i seem to get headcold symptoms, headaches, earaches, glands go up etc.. is that all part of it? like i have short hair and i got it cut the other day and its hit me again with vengence.. Do you know if anyone else has ever had all this just from washing their hair or going out into a breeze or for a walk? Many Thanks Chantelle |
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (03-16-2011) |
03-14-2011, 09:07 AM | #12 | ||
|
|||
Junior Member
|
Quote:
Apologies for the delay. Wow.. your going through an awful lot like i am along with the docs thinking i'm just a worrier and making it up or causing these symptoms to manifest.. i have been told to see a counseller too.. its frustrating I finally got an appointment for an MRI which will be on the 20th of April. I will take your advice and get B12 checked next time i get tests done.. i'm due to get more done as i have high bilirubin. I do eat quite well and take vitamins but i guess it all depends on how the body absorbs etc. I find that if i wash my hair or go for a walk or there is a breeze etc the symptoms come back with a bang.. its horrible.. earaches, glands go up headache, generally sensitivity also heat tends to affect me in a different way, its all so difficult. I'm wrecked the following day after doing something small the day before.. feel out of it, unbalanced, confused, severe fatigue, i do have many MS symptoms so we'll see what the scan reveals. I also seem to have muscular pain in the neck.. have you ever mooved or stretched and get a sudden like shock of electricity almost travel through your head, its agony. Hope to hear back from you, how are you doing lately? and apologies for the delay Chantelle |
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (03-16-2011) |
03-14-2011, 09:11 AM | #13 | ||
|
|||
Junior Member
|
Quote:
Apologies for the delay. Along with your nose being sensitive what other symptoms and triggers do you have? I'd be very interested to hear all about it.. Its so frustrating that the air or showering etc causes my sypmtoms to immediately flare up.. MRI scan on April 20th so hopefully that will explain a few things but again so many docs write it off and think im just a worrier because what i'm experiencing but its all connected. Frustrating Hope to hear back from you Kind Regards Chantelle |
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (03-16-2011) |
03-16-2011, 07:27 AM | #14 | ||
|
|||
Junior Member
|
|
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (03-16-2011) |
03-18-2011, 01:01 AM | #15 | ||
|
|||
New Member
|
Quote:
Dental work was when my pain started, but I do not believe it caused the illness. If you haven't had any pains such as electrical pain, brushing your hair, washing your face, smiling, etc., you sound like someone who has an illness other than TN. Trust me, I know where you are coming from. It is hard to find a doctor who identifies with you without thinking you are crazy and do not let anyone try to convince you that you are crazy. Can you eat anything sour? Sour things trigger TN in some cases. With my TN, the cold wind made my face pain and shocking worse, however, I never had ear pain, but others might say different. I have heard of ear pain. Please do not give up on looking for a good TMJ Dentist. Dental work can cause many problems, also. Nerve damage. You seem to be describing somethiing different than TN pain. I had TN severely and because I had never heard of it, I was misdiagnosed as having TMJ. This is why I am suggesting TMJ problems. I had TN for years and was given a miracle by surgery and am now pain free. |
||
Reply With Quote |
03-20-2011, 07:40 PM | #16 | ||
|
|||
Junior Member
|
Isn't it possible to have a mild form of TN which may get worse as time goes by or remain the same?
|
||
Reply With Quote |
04-21-2011, 01:07 PM | #17 | ||
|
|||
Junior Member
|
Hi guys
Yesterday i had a consultation with a neurologist.. not much news in regards to TN but first things first i guess, from all my other symptoms she thought it sounded like Vestibular Dysfunction, i will be starting to go to a Physio Therapist at some point to help with it, also i ned to get a few blood tests and she wants to check the B12 levels.. and i am on a waiting list for an MRI which is in 6 months just to rule out something more sinister. I looked up Vestibular Dysfunction on vestibular.org and wow it describes everything i'm going through barr the electric shocks and headaches, trigger points etc.. but baby steps, this is progress that i'm now being taken seriously and not just told its stress.. so hopefully regarless i'm on te road to getting some relief Definitely going to keep you all posted but also if anyone has any info or advice on Vestibular Dysfunction/Migraines please let me know Thanks Everyone Chantelle |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Trigeminal Neuralgia | Peripheral Neuropathy | |||
Trigeminal Neuralgia??? | Trigeminal Neuralgia | |||
So, Trigeminal Neuralgia.... | Multiple Sclerosis | |||
Trigeminal Neuralgia? | Social Chat | |||
bi-laterial trigeminal neuralgia - info PLEASE | New Member Introductions |