[beth bailey]

I was diagnosed with TNA and TN in November of last year, however I did not know the difference (and still don't). Mine started in the middle of the night waking me from a sound sleep with sharp unbearable pain that last almost 3 hours. After two night in a row of this I went to the walk in clinic. I was lucky I was diagnosed from the first doctor I seen and was put on meds.

Tegretal made me sick so I was put on oxcarbazepin, which started at 300mg per day and quickly increased to 1200. Meds did not help my pain, I elected to do the MVD very quickly as my attacks increase to almost everyday and were lasting up to 3 hours each. I had to go to the ER one night and be put on morophine to stop the pain.

My surgery was February 17 this year. After 6 hours of surgery, two days in ICU and 2 days regular hospital room I was released. I had a lot of problems with my eyes at first and was soo tired I could hardly function. 2 weeks after surgery I developed a CF leak and had to have a spinal tap to divert the fluid back down my spine which was very scary.

Half my face, on the right side (the side of my TN) is numb from just below my nose all the way down including half my tongue and lips,( chin is the worse) also right in front of my right ear. I have small tinges in my lips and tongue and the spider web feeling across my face several times a day.

More recently I have been having small pains in my jaw and under my right eye, not even close to the intensity and only last a few seconds. I still take 600mg of my meds per day because I afraid if I stop the massive pain will come back. My doc says this is all normal but I am not sure, is it too early to tell?

After reading the threads here and hearing that maybe TNA has a less chance of being stopped with MVD I am fearful.

Would love some feedback.

Thanks for your help
Beth