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Old 07-30-2011, 07:09 PM #1
sadie324 sadie324 is offline
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sadie324 sadie324 is offline
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Default TN now on other side of face

Hi all .. well where to begin ..

I am currently 6 months post op from an MVD on my right side of my face for typical TN. I am still having the atypical pain but the typical did stop thank god. Now all of a sudden I am having these horrible horrible pains on my left side of my face. I have no idea how this even happens or if this has happened to anyone else? I never had any pain on this side of my face & cant believe I really am. It is like someone is stabbing me with a knife. HAS ANYONE EVER HAD THIS HAPPEN WHERE YOU GOT PAIN ON THE OTHER SIDE??
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Old 08-01-2011, 11:26 PM #2
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YEP.

The pain was always on my right face/ear/mouth....I had drugs, gamma knife, gylcerol injection, and, finally, a successful balloon compression. Six months later I began having pain on the left side.

Thankfully, the Dilantin has dealt with it thus far, but.....we'll see.

Hugs to you, this is the ultimate mind f**k.
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Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire


dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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Old 08-03-2011, 10:25 AM #3
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My pain has always been on the left side of my face. I went through two Balloon Compressions, an MVD and Glycerol injections (several) that did not work. I don't understand about you having
pain on the other side now. Make an appt. with a Neuroligist right away. Bombard him with questions. This is so rare as TN itself is a rare disease. I am hoping things get straightened out (it will) You are special, take a deep, slow breath and put in you mind something you love to do and picture yourself doing it. Blessings, Doodle bug7

Last edited by Doodle bug7; 08-03-2011 at 10:28 AM. Reason: explains better
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