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gammaknife - yes/no?

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Old 08-31-2011, 07:59 PM #1
dlee dlee is offline
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Default gammaknife - yes/no?
Saw the neurologist yesterday and enquired about the gammaknife procedure. He said it wasn't effective (none of his patients who have had this procedure are happy with it) and could not refer us to any clinics or hospitals.

Before I expend additional calories pursuing this course of action (getting 2nd, 3rd opinions), I would really appreciate any/all gamma knife patients sharing their success/non-success results.

Thank you.
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Old 09-01-2011, 05:41 PM #2
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I had a GK that was successful for about six months. Then I had a glycerol injection with about the same results, and then a (so far) successful balloon compression in May 2010.

Good luck!
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Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire

dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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Old 09-01-2011, 05:48 PM #3
tarlovpain tarlovpain is offline
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Default gamma knife
Saw a web site that might help. I think it was Anims. Or something similar. It came up with search words of "tarlov cysts, Fiegenbaum,spinal surgery.
Quote:
Originally Posted by dlee View Post
Saw the neurologist yesterday and enquired about the gammaknife procedure. He said it wasn't effective (none of his patients who have had this procedure are happy with it) and could not refer us to any clinics or hospitals.

Before I expend additional calories pursuing this course of action (getting 2nd, 3rd opinions), I would really appreciate any/all gamma knife patients sharing their success/non-success results.

Thank you.
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Old 09-05-2011, 05:50 PM #4
dlee dlee is offline
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Default gammaknife - yes/no?
Quote:
Originally Posted by Fowki View Post
I had a GK that was successful for about six months. Then I had a glycerol injection with about the same results, and then a (so far) successful balloon compression in May 2010.

Good luck!

Hi Fowki -
Thanks for your reply. It's been the only one. I guess the procedure is not as common as I thought. Appreciate it.
dlee
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Old 09-09-2011, 03:52 PM #5
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Dlee,

Have you ever lived in the San Diego area? I went high shcool with a girl named D'lee.....
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Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire

dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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