[booklass]

I am curious to know how often everyone's TN has occurred alone or if it traveled in a posse with some other illness? I have an autoimmune disease, and it is possible that if this is confirmed as TN, it is comorbid with that illness. Since this whole thing took me by surprise, I am trying to figure out HOW I came to be in such pain in the hopes I can understand a way out of it. Hopefully the Lyrica will kick in....

[Gregcool]

Well mine just turned on one day, i have it in the right side of my face and teath, likea very hot burning feeling, its there all day every day , but some days i get it on both sides of my face, bummer im on sodium valprate which at the moment , is doing ***** all. Very sad. But yes !! Mine just come on slowley for a few weeks, then more and more intence,

[booklass]

Gregcool, I just saw the neurologist yesterday. It is possible my TN has been brought on by my low thyroid. Makes me wonder what other conditions can do this. I know any sort of autoimmune disease will. I am sorry that yours has decided to find a home in you. TN is the kind of guest who may never leave and is definitely not wanted. I am getting quite a bit of relief, thus far, with the Lyrica. I hope yours continues to respond into treatment or, better yet, just leaves.

[Gregcool]

Hi booklass, funny how you say your low thiroid started yours of, i was told by my doc i have an underactive thiroid just before my tn started. I was given meds fir this, but i had crap side efects for the thiroid isue, so i stoped taking them. Didnt think of that causing my tn. Do you take thiroid tablets, do they help your TN IN ANY WAY.

[Gregcool]

Also what is this medication you r on , how good is it

[booklass]

I am on Levothyroxine, but I have heard others say that Armour was the better one to be on. The thyroid issue is more complex than I realized before, and this is all brand new, as of a week ago, to me. Too soon to tell if it will help, but I know for sure that I MUST take some sort of medication because there are some nasties waiting in the wings, including nerve damage, if I do not. Something, probably the Lyrica, is helping with the TN. Or it could be the thyroid meds and the Lyrica. I started them all about the same time. They will take me off the Lyrica down the road, like in a couple of months, to see if the TN is gone. THEN we will know it was thyroid. Hope you can find something that works for you!