advertisement
Reply
 
Thread Tools Display Modes
Old 10-19-2013, 01:54 PM #11
justjane37 justjane37 is offline
Junior Member
 
Join Date: Sep 2013
Location: Ontario, Canada
Posts: 85
10 yr Member
justjane37 justjane37 is offline
Junior Member
 
Join Date: Sep 2013
Location: Ontario, Canada
Posts: 85
10 yr Member
Default

Perlo.
Your pain does sound so similar to mine. I'm so sorry that you have had so much dental work done unnecessarily. And are in so much pain. I am still convinced sometimes that it must be my teeth. There are times I wish I could pull them out myself!!
This has been such a frightening experience. Even when I am not in pain I am always waiting for it to come back. It's exhausting and really has a negative effect on my overall mental state. I am terribly distracted by the pain most of the time and it is easy to fall into depression and anxiety.
I have never tried to take Valium? What side effects does that give you? What other meds are you trying? Are you still in pain?
I thankfully don't get migraines with my pain but I know that a lot of people do. I hope you are finding some relief
justjane37 is offline   Reply With QuoteReply With Quote

advertisement
Old 11-20-2013, 07:51 PM #12
joyceelena joyceelena is offline
New Member
 
Join Date: Nov 2013
Posts: 2
10 yr Member
joyceelena joyceelena is offline
New Member
 
Join Date: Nov 2013
Posts: 2
10 yr Member
Default pain replaced with sensations

Anybody experience crawling, scale-like, toothpick, sensations inside mouth following gamma knife procedure. No pain now, but sensations are driving me crazy!
joyceelena is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vowel Lady (12-11-2013)
Old 12-01-2013, 02:29 PM #13
Vowel Lady's Avatar
Vowel Lady Vowel Lady is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,190
15 yr Member
Vowel Lady Vowel Lady is offline
Senior Member
Vowel Lady's Avatar
 
Join Date: Aug 2006
Posts: 1,190
15 yr Member
Default

Perlo,
I'm so sorry. Horrible!
Our stories are somewhat similar.
I have many losses, including a pulled tooth...all for no reason.
I also have what looks like permanent pain.
My dx is Atypical Trigeminal Neuralgia.
Can you take the Valium long term?
Check out a book called " Striking Back!"
Also check out my previous posts.
Wishing you well..... I know this is very hard.

Last edited by Vowel Lady; 12-01-2013 at 02:52 PM.
Vowel Lady is offline   Reply With QuoteReply With Quote
Old 10-11-2014, 11:36 AM #14
Maryellen N Maryellen N is offline
Junior Member
 
Join Date: Oct 2014
Location: GA - US
Posts: 6
8 yr Member
Maryellen N Maryellen N is offline
Junior Member
 
Join Date: Oct 2014
Location: GA - US
Posts: 6
8 yr Member
Default

Hey ibdvine, I am lost here trying to Post!!! Your post describing your strange sensation on the left side of face, etcetera was helpful because I have exactly the same thing!!!
I registered this early morning after finding your post on Google search. I am not used to this website, find it confusing to write a Reply. Anyway thank you, you helped me a lot!!!
Hope you send me a reply someday!
xxx
Maryellen N is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (10-11-2014)
Old 10-11-2014, 01:56 PM #15
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

Hi Maryellen.

I just sent you a message in the New Members Forum. I see you've found that now.

ibdevine hasn't posted since 2012, so you may not get a reply.

As I said in the other forum, you could check out the FAQ - Frequently Asked Questions to get help with how to post a reply or to create new threads.

Try the search feature for any words that you are looking for information about. That'll bring up information but some of it will be dated.

You could start your own thread and then you may be able to get support and information from current members. Just put words in the title that you think are important about your specific condition - e.g. strange sensation - face or something like that.

At the top of this forum too, there are what we call "Sticky Threads" . They contain all the useful websites and other helpful information regarding Trigeminal Neuralgia. Lots of good info. in those.

Lara is offline   Reply With QuoteReply With Quote
Old 10-13-2014, 10:33 PM #16
Maryellen N Maryellen N is offline
Junior Member
 
Join Date: Oct 2014
Location: GA - US
Posts: 6
8 yr Member
Maryellen N Maryellen N is offline
Junior Member
 
Join Date: Oct 2014
Location: GA - US
Posts: 6
8 yr Member
Default Hope this NT member is still active

Quote:
Originally Posted by Tebori View Post
Any updates ibdvine? I've found many of these people with similar symptoms and they never follow up on things. I've been having this same things for 7 months and its constant. I've seen many doctors and one neurologist. No one knows what's goin on. Some say irritated trigeminal nerve. I'd really love to hear what has happened since your post. Hope all is well!
hi Tebori, if you are still an active member I will ask you about your symptom of a strange sensation on the face. Hope you got better.Thank you. Maryellen
Maryellen N is offline   Reply With QuoteReply With Quote
Old 12-27-2014, 11:57 AM #17
Milly007 Milly007 is offline
Newly Joined
 
Join Date: Dec 2014
Posts: 2
8 yr Member
Milly007 Milly007 is offline
Newly Joined
 
Join Date: Dec 2014
Posts: 2
8 yr Member
Default

I was recently prescribed Micardis for elevated blood pressure. One of it's obscure side effects was jaw and face pain in women with osteoporosis. The symptoms resolved when I discontinued the medication
Milly007 is offline   Reply With QuoteReply With Quote
Old 10-18-2015, 12:25 AM #18
hantzec hantzec is offline
New Member
 
Join Date: Oct 2015
Posts: 1
8 yr Member
hantzec hantzec is offline
New Member
 
Join Date: Oct 2015
Posts: 1
8 yr Member
Default

Hello guys, sorry to bring up an old thread but I can totally relate to op's symptoms. I always have strange facial tightness/numbness or stiffness on one side of my face for about two months already. However, I still have total control of my face and facial sensation like normal(I look normal too). The area of the symptoms are from my eyelid down to cheek and upper teeth of that side. The symptoms are changing(can switch side like a mirror image), but mainly between the said areas. The upper teeth on the affected side feel kinda swollen and wanting to clench but my teeth are fine. I did a dental x-ray to confirm it. One way for me to check the strange feeling is to make facial expression like moving my cheek or blinking my eyes. If it's there, I will feel like I am moving a 'stiff' cheek. I also suffer from one-sided neck pain too. I also find that wearing glasses will kinda exacerbate the conditions. I have seen eye doctor, ENT, dentist and chiropractor but to no avail. I am currently seeing a chinese neurologist and am under her medication. Can anyone tell me what am I facing? I am only 18 years old and it is not fun to have strange feeling on your face 24/7. Please help me
hantzec is offline   Reply With QuoteReply With Quote
Old 03-05-2016, 12:36 AM #19
Rab_1379 Rab_1379 is offline
Newly Joined
 
Join Date: Mar 2016
Posts: 1
8 yr Member
Rab_1379 Rab_1379 is offline
Newly Joined
 
Join Date: Mar 2016
Posts: 1
8 yr Member
Default Strange facial sensations

For the past few months I have been experiencing a strange feeling on the left side of my face. To describe it, all I can say is that it feels like someone is squeezing that side of my face, but at the same time kind of feels numb with some tingling. I feel this more particularly in the corner of my left eye. Can anyone please help my in figuring out what this is?
Rab_1379 is offline   Reply With QuoteReply With Quote
Old 06-04-2016, 05:20 AM #20
Jj72 Jj72 is offline
Newly Joined
 
Join Date: Jun 2016
Posts: 2
5 yr Member
Jj72 Jj72 is offline
Newly Joined
 
Join Date: Jun 2016
Posts: 2
5 yr Member
Thumbs up

Quote:
Originally Posted by Rab_1379 View Post
For the past few months I have been experiencing a strange feeling on the left side of my face. To describe it, all I can say is that it feels like someone is squeezing that side of my face, but at the same time kind of feels numb with some tingling. I feel this more particularly in the corner of my left eye. Can anyone please help my in figuring out what this is?
Hi
I am new to this forum and really wanted to post as I have another similar story.
But I will say all these stories Sound to me like a nerve problems. Any numbness and tingling and other odd feelings tightness seem to be nervy.

I have been experiencing similar sensations on and off for nearly two years.
Mine started during a time I had a chronic systemic infection. While I was sick I started noticing feelings of pins and needles in the left side of my face which seemed to come and go for three months then after that I felt more of a sunburnt feeling from my left ear to my left eye with tightness feelings also like someone had injected concrete in parts of my face.
I now get odd feelings around left side of nose eyebrow area and chin and near left eye all on left side. It's like someone has pressed me in those areas at times. Then I have had a grazed feeling like my face has been rubbed with sandpaper. slapped feelings I get . burning acid feelings then odd aches. I have had the odd jab almost like an icepick. They all come and go in waves.
I have seen a neurologist and had MRIs. Mri was fine.
The latest she said about my case is that my symptoms are probably caused by the illness but I have a neuropathic pain in my trigeminal nerve. Like my nerve has been irritated. She mentioned it could be linked to my migraines also. I don't fit the classic TN symptoms with electric shock sensations. My pain is bearable mostly but not nice. There is still so many question marks on my diagnosis.
I've tried nortyptiline and topomax. Nortriptyline helped me but Could not handle topomax. I am currently off medication and am seeing an upper cervical chiropractor and am on a special diet, fish oil etc. it has not gotten worse but I have good days and then bad. So I can only wait and see and take one day at a time. If anyone has any other thoughts I would also appreciate it.
Jj72 is offline   Reply With QuoteReply With Quote
Reply

Tags
face sensation

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Strange Sensation and Thud in Throat and Upper Chest JannaMay17 General Health Conditions & Rare Disorders 11 09-30-2018 09:58 AM
Strange sensation of 'brain jolt' ... anyone else experience anything like this? Theta Z Traumatic Brain Injury and Post Concussion Syndrome 10 02-01-2013 12:04 PM
Left Side Head Throbbing-above and in front of left ear. bmwzw Trigeminal Neuralgia 9 10-06-2012 02:37 AM
Facial Sensation ClaireC General Health Conditions & Rare Disorders 0 07-18-2009 08:02 AM


All times are GMT -5. The time now is 01:32 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.