Hello
I am a woman 63 years of age. I live in Israel

Hello

My atypical pain of face had started 6 years ago, after an extraction of teeth 44My pain continuous 24 hours a day. The pain is like electric pulses all day and night
I was treated by radio frequency 3 times in differnt places in my head.
A year ago i was supposed to have a motor cortex stimulation but i did not. The ministry of health had not approve it. Last year my pain worsened.
I have two questiones.
1.Has somebody know a new madicine which can relief my horrible pain?Maybe a combinations of 2-3 madicines?
I was trying all.
2.Can somebody tell me his opinion or experience of MVD? I was not an adequate for it because my pain continues all day all night with no reliefe between.Thank you
Miki 7

I have ATN after dental work. It was horrible. My doctor worked closely with a pharmacist to create a special cream with three medicines in it. I rub this cream on my face 4 or 5 times a day and it has helped the pain a lot.

Usually MVD isn't the best idea for someone with atypical pain....usually better for someone with typical symptoms.

Go to livingwithtn.org and ask these same questions. I found that site very helpful.

I hope you find good help and relief very soon.

Hi
Thank you very much for your reply.
Can you get me the name or ingrediants of the special cream you rub your face with?
It"s so crucial for me!!
miki 7

Hi,

I have Atypical Trigeminal Neuralgia too. My pain is in my teeth, jaw, cheek and ear on the left side. Mine was not caused by dental work but mimics tooth pain for sure and I have had unnecessary dental work trying to get rid of the pain.

livingwithtn.org is a fantastic site and you will find answers there. There are many different medications to try and everyone responds differently. What works for one person does not work for another.

I am on 40 mgs of Amitriptyline and it has worked wonders for me.

There is a topical lidocaine cream or gel. Also a magic mouthwash. Both are covered extensively on that website. You should join and ask away. Some people have creams made--here are the ingredients of one I found listed (ketamine, baclofen, gabapentin, amitryplyline, clonidin and bupivacaine).

Good luck

Just saw this, and answered you in a pm. My pain is so similar to Jane's. Hideous.

Hugs to you Miki and Jane as well...((hugs))

My cream has Gabapentin, Lidocaine and Capsaicin.

Trycyclic antidepressant are often somewhat helpful. Amitrytyptiline, I guess is the most popular. I think it is also called Elavil. I take Desipramine, which is in the same family. I take a tablet. I asked for this because some people think it might cause the least amount of weight gain. I think I gained about 3.5 pounds from it, which really isn't too bad. My doc felt I needed the cream and the tablet. He was right.

I had tried other meds like Lyrica, which help a little, but had negative side effects for me. My stomach took a beating from various meds.

Yep, everyone is different.

My cream didn't really kick in right away. It took a few weeks or so, but then one day, I noticed a nice improvement. Things aren't perfect, but goodness, it is better and I am appreciative! I do have fearful moments...I know it is frightening.

That website I mentioned earlier is fantastic! Don't give up!

BTW, I also get some mild improvement by eating properly, avoiding junk food, gluten, fatty foods....the usual suspects and not sleeping on my bad side!!!!! Ok, a tiny improvement, but every little bit counts.

Good luck and keep in touch!

I have had atn for over 20 years. these are some things I'm on now that you may want to consider Gabepentin, Lyrica, clonazepin, and cymbalta. I take all three and my burning pain has subsided in the past. Right now I'm in a crisis and my doses probably have to be changed. You may also consider seeing an upper cervical chiropractor ; they can help tremendously for some patients.
Be well.