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07-06-2014, 09:13 AM | #1 | ||
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Magnate
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This thread, from the General Health Conditions forum, is far too important a topic and series of posts to just be accessible there, so I'm linking it here:
http://neurotalk.psychcentral.com/thread206493.html Please read, comment, share. |
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07-07-2014, 10:00 PM | #2 | |||
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Senior Member
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Quote:
For example, I went to the dentist with no pain for a crown and ended up with pain due to nerve damage. Each dentist I went to after that, actually made things worse and I lost a tooth. Dentists don't seem to want to learn about nerve damage and so are more inclined to cause it or not recognize it when they see it. I was shocked when I read in the book"Striking Back," how typical this scenario is...all because dentists are ignorant about nerve damage and refuse to educate themselves. Because of this ignorance, I ended up with trigeminal nerve damage and it is AWFUL!!!!!! |
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09-12-2014, 07:08 PM | #3 | |||
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Junior Member
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I stopped going to my primary care physician that I had been seeing for 14 years because of his nonchalant attitude toward TN. I was very mad when I left his office and never went back. All he could say was "Just remember that it's (the TN) not fatal" Are you kidding me? After going to 4 different Neurologists that just wanted to throw medications at me and send me to pain management, the 4th one finally said that I needed MVD surgery since none of the medications were working. I should mention that I had type 1. The other 3 told me that there was nothing else they could do for me. That's the last thing you want to hear from a doctor. Not a single doctor up to that point told me there was a surgery that can be done. Did they not know? I'm thinking not. So to make a long story short...I now have a VERY jaded opinion of doctors in general. I have to say that when I finally was able to see a Neurosurgeon, He was great. Once he found out that none of the medications I had tried over the last 18 months worked, he scheduled me for MVD surgery. That was 3 years ago and I am pain(attack) free. Literally saved my life and gave me my life back. I guess there are some good doctors out there but in my opinion they are hard to find. |
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"Thanks for this!" says: | Vowel Lady (09-15-2014) |
09-15-2014, 08:59 AM | #4 | |||
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Senior Member
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Zatochi, Your post resonated with me on several levels. I am so glad you had the MVD and are TN pain free. what a blessing!!!!!
But it is disappointing, to put it mildly, how doctors (and dentists) seem to be so inefficient (for lack of a better word) lately. I have ATN and my MRI was fine; so MVD isn't for me. I am having more and more breakthrough pain and am bedridden with my iPad this moment. It is hard not to be frightened. I fight for my sanity almost daily. I'm having some oddities with nerve pain in other areas...but nothing even close in degree as the ATN. I have lupus and Sjögren's syndrome...as well as other AUtoimmune related illnesses. Do you have or suspect any auto immune illness? |
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