I also suffer from pain in the left eye and headaches in the head and back of head radiating to left side of face upper teeth and cheek, forehead. I have been rediagnosed with trigeminal neuritis and occipital neuralgia. Try ice on the back of your neck and see if it helps. The pain docotr pushed on the back of my head which sent me to the roof, but it confirmed the occipital diagnosis. I am trying to have stimulators implanted, but insurance is saying it is experimental. I am also having nerve blocks in my neck and head to see if they help. I was also told to have the MVD surgery by some doctors, others not so now am trying other methods. Do not give up search and be sure before you have the surgery. Take care ,Jen

Just a quick update, my doctor tells me today that he thinks that "it's in my head" and that I probably need some psycho therepy......IT'S RIGHT ON THE MRI REPORT THAT the superior cerebellar artery is touching the cisternal portion of the left trigeminal nerve......WTF???

I am getting so sick of these doctors, for years they came up with all sorts of diagnosis', all to no avail, now i finally have some visual evidence and now I'm told that i am creating it.....

Just had to vent, does anyone know for a fact that you can have artery touching nerves and NOT have pain from it?? I am very curious about this. Please give me some feedback.

Ron

Ron, TN is all in your head, but not the way your writing of his comment infers. If it were me, I'd take the films and report to a new neuro doc and see what they say. MRI's don't always show arteries or vessels wrapped around the nerve but if yours does, than the literature out there says that explains it.

FIND a NEW doc QUICK!!!

ee

Hey ron - I totally agree with ee. Four years and $50,000 in debt, plus the loss of a 35 year career - that's what my "all in your head" pain has cost me. PLEASE, get on a search engine and type in "trigeminal nerves" - they all start in the MIDDLE of your brain and branch out like limbs of a tree. I'd suggest printing a good "visual" and always have it when you talk to an MD. Ask them to point to the origin of your pain.

You are not crazy!!! Janet

Since I am new to the forum it won't allow me to submit a link yet, but a report on the USC Keck School of Medicine describes exactly what your medical report says it is. Anyone who wants a link to this page, contact me through the forum and I'll get a link to you.

can I have that link please?

Hi there Jen,

This sounds so much like what I'm going through. I've been so discouraged and have not responded well to treatments. I just wanted to say hi. I hope something will work out well for you.