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Old 01-16-2015, 06:38 PM #21
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Originally Posted by MakenzieMarks View Post
It is as if the TN has a mind of it's own, constantly hiding and tricking me. I sometimes want to scream until I can't stop but the neighbors would freak. The only time I have relief is at night when I sleep and when I wake up ion the morning. That's about it. If I could have two days straight without any discomfort I would be happy.
That's the nature of the Beast we have to live with. If you cannot work out what is triggering attacks around the same time every day (with exception) how about pushing your meds back by an hour for a week. Change up anything else you can think may be contributing to the attacks, eating, teeth cleaning, etc…
Don't let it overwhelm your mind, do you have anything that helps you maintain a calm state?

Dave.
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Old 01-16-2015, 11:55 PM #22
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I have trigeminal nerve injury from a dental procedure. It has nothing to do with classic trigeminal neuralgia. It is imperative that you seek a second dental opinion by an expert on your condition!
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Old 01-17-2015, 03:40 AM #23
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Originally Posted by EnglishDave View Post
That's the nature of the Beast we have to live with. If you cannot work out what is triggering attacks around the same time every day (with exception) how about pushing your meds back by an hour for a week. Change up anything else you can think may be contributing to the attacks, eating, teeth cleaning, etc…
Don't let it overwhelm your mind, do you have anything that helps you maintain a calm state?

Dave.
In other words change the schedule to 7am 1pm and 7pm to see if that works better? I will try that. Flossing starts the flare up sometime I brush and nothing happens and then it starts. I will try that. Thank you.
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Old 01-17-2015, 03:43 AM #24
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I have trigeminal nerve injury from a dental procedure. It has nothing to do with classic trigeminal neuralgia. It is imperative that you seek a second dental opinion by an expert on your condition!
I have seen three and they all say the same thing. I had this after a tooth cleaning and then a root canal and a tooth pulled which didn't need pulling. I finally found someone who diagnosed it. I think it is also from a dental procedure. What are you doing or taking for it.
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Old 01-17-2015, 06:34 PM #25
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I have trigeminal nerve injury from a dental procedure. It has nothing to do with classic trigeminal neuralgia. It is imperative that you seek a second dental opinion by an expert on your condition!
Hi Cleo,
What do you call 'Classic TN' there?

Dave
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Old 01-18-2015, 04:31 AM #26
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Hi Cleo,
What do you call 'Classic TN' there?

Dave
Since I am new this, having been diagnosed only a month ago. I would also like to know what is Classic TN is. Thank you English Dave. I wonder myself if the body gets use to the schedule and sometimes it is best to change it a bit to see if there is a difference, Your knowledge is much appreciated, as is just jane.
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Old 01-19-2015, 09:58 PM #27
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Classic TN as advertised by the TNA
Classic Trigeminal Neuralgia, type 1, (TN1): (also known as tic douloureux) facial pain of spontaneous onset with greater than 50% limited to the duration of an episode of pain (temporary pain). TN is often caused by loss of or damage to the nerve’s protective coating, (myelin). The most widely accepted view is that myelin damage results from irritation of the nerve, usually a blood vessel that causes the nerve to be compressed.
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Old 01-20-2015, 04:25 AM #28
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Originally Posted by Cleo View Post
Classic TN as advertised by the TNA
Classic Trigeminal Neuralgia, type 1, (TN1): (also known as tic douloureux) facial pain of spontaneous onset with greater than 50% limited to the duration of an episode of pain (temporary pain). TN is often caused by loss of or damage to the nerve’s protective coating, (myelin). The most widely accepted view is that myelin damage results from irritation of the nerve, usually a blood vessel that causes the nerve to be compressed.
Is that caused by a disease or just aging? Can you get a form of TN from a dental treatment? Thank you. Can you be pain free one day and all of a sudden have these problems?
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Old 01-20-2015, 08:59 AM #29
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Originally Posted by Cleo View Post
Classic TN as advertised by the TNA
Classic Trigeminal Neuralgia, type 1, (TN1): (also known as tic douloureux) facial pain of spontaneous onset with greater than 50% limited to the duration of an episode of pain (temporary pain). TN is often caused by loss of or damage to the nerve’s protective coating, (myelin). The most widely accepted view is that myelin damage results from irritation of the nerve, usually a blood vessel that causes the nerve to be compressed.
Thanks for that Cleo, I read their Site - and also the English TNA Site, amongst others.
Over hear everything is lumped under one umbrella heading - Neuropathic Facial Pain (Perhaps this would be a better Forum title?) - which includes pain from TN, Diabetic Neuropathy, MS, etc… But what's in a name - or cause - on this Forum when the excruciating pain is the same and you are looking for support from fellow sufferers?
I, myself, have a knot of arteries wrapped around my left trigeminal nerve before the branching, causing constant parasthesia (painful pins and needles) on the left side of my head and face - especially forehead and nose - (Neuropathic Facial Pain).
Classic TN attacks happen when the arterial knot tightens, or moves - cold weather, stress, touch and especially my GTN heart spray which dilates blood vessels. Then the pain is ramped up to a burning electrocution. Like everything else, I get it in Spades.
As an aside, the TNA statement that TN is probably the most painful of human conditions is a wild one. Having the misfortune to suffer Cluster Headaches aka Suicide Headaches - which last for up to 2 hours and make me want to smash my head against a wall, or reach into my skull and rip my brain out - as well I can categorically state TN is second place. (Ladies, please don't mention childbirth)

Dave

Last edited by EnglishDave; 01-20-2015 at 10:23 AM. Reason: Adding Cluster Headache para.
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Old 01-20-2015, 11:47 AM #30
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Originally Posted by EnglishDave View Post
Thanks for that Cleo, I read their Site - and also the English TNA Site, amongst others.
Over hear everything is lumped under one umbrella heading - Neuropathic Facial Pain (Perhaps this would be a better Forum title?) - which includes pain from TN, Diabetic Neuropathy, MS, etc… But what's in a name - or cause - on this Forum when the excruciating pain is the same and you are looking for support from fellow sufferers?
I, myself, have a knot of arteries wrapped around my left trigeminal nerve before the branching, causing constant parasthesia (painful pins and needles) on the left side of my head and face - especially forehead and nose - (Neuropathic Facial Pain).
Classic TN attacks happen when the arterial knot tightens, or moves - cold weather, stress, touch and especially my GTN heart spray which dilates blood vessels. Then the pain is ramped up to a burning electrocution. Like everything else, I get it in Spades.
As an aside, the TNA statement that TN is probably the most painful of human conditions is a wild one. Having the misfortune to suffer Cluster Headaches aka Suicide Headaches - which last for up to 2 hours and make me want to smash my head against a wall, or reach into my skull and rip my brain out - as well I can categorically state TN is second place. (Ladies, please don't mention childbirth)

Dave
I can't mention childbirth, as I have never had a child, but what you are having to deal with every day is terrible. I will send good thoughts your way.
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