I truly appreciate that, but I notice your mood is 'sick'. Has changing routine helped at all? Give things a few days to settle - and your meds will still be building up in your bloodstream.
Try to stay strong, it may be a long-term/life-long condition for most of us, but with the right meds your body and mind can learn to better tolerate the pain. Believe me, Neuropathic Facial Pain - whatever the cause - is a debilitating condition which can ease, then come back with a vengeance (except for rare cases like mine where the condition is Chronic, as are my Cluster Headaches - I must have been Ghengis Khan or Attilla the Hun in a past life). You have to be mentally prepared for this, I'm afraid.
I hope your flare-ups are soon under control and this episode becomes a nasty memory, just make sure you do not slip into the trap of Depression which is so hard to climb out of. There is support of all kinds across the Forums, not just here. Why not pop over to The Lighter Side and see if my Celebratory joke can put a gentle smile on your face.

Dave.

You did make me smile. I didn't change the meds around and there is a change. Thank you so much.

The type I have is caused by a dental procedure in 2001. Mine is dysesthesia in the tongue which began instantly as burning electrocuting numbness along with my teeth feeling like a vice grip had been placed on my lower jaw. I had oral nerve surgery in 2002 that did help over the course of several years with some of the tongue issues. I agree with Dave its all neuropathic pain but you really need to be treated for the specific neuropathic pain conditions by certain doctors who deal with those specific nerve problems.

Ah, there's the difference! Over here I have seen the same Neurology Dept. (never the same Neurologist) for TN, Neuropathic Facial Pain/Parasthesia, Neurological Hypersensitivity, Cluster Headaches, Brain MRI results, and am going to the same Dept. regarding my latest MRI, Brain Lesion (cause), Spinal Cord Compression, Arachnoid Cyst…

Dave.

What is oral nerve surgery? I don't have any neuropaths here, neurologists and neuro surgeons yes but no neuropaths.

In my case oral nerve surgery was A micro neurosurgery in the oral cavity performed in an attempt to relieve trigeminal nerve disorder caused by dental procedure that resulted in trauma to the nerve. My main doctor was a oral & maxillofacial jaw surgeon. The reason I responded here to this discussion was because I noticed the mention of dental work and nerve pain.

Cleo,
You don't have to justify your input, everyone is welcome that is the beauty of this Forum. In your case you brought new, first-hand experience to the discussion - hopefully leading Makenzie to new, improved treatment and less pain.
I cannot imagine having tongue and jaw problems that you had/have. The TN hurts (obviously), but my main eating/mouth problems come from the parasthesia where my lips, cheek and tongue are pins and needles numb. This brings on a fair amount of drooling, slopped drinks(I tend to drink out of bottles to reduce this, plus I shake a lot) and bitten cheek and tongue when I eat.
When there is something neurologically wrong with your tongue it feels, well, Wrong! More so than other body parts I think. Does it also affect your speech as it does mine?
I wish you continued improvement.

Dave.

I have never heard of the surgery, This is done by an oral surgeon who is also maxillofacial jaw surgeon?

I have never heard of the surgery, This is done by an oral surgeon who is also maxillofacial jaw surgeon or another doctor?? Did it help?

Yes I had 3 oral surgeon opinions. Only one did total face/jaw reconstruction ect.. Your dentist, endo, perio, or oral surgeon should follow up with your condition until it resolves. Pain management is for drugging the pain when it becomes chronic.