I just want to say that the Taurine is still working. I felt some pain today, but it was just because I was late taking it, but once the Taurine kicked in I was pain free. The Dilantin didn't even work this good. I'm keeping my fingers crossed that the Taurine will continue to work this good.

You know, Dilantin used every day...is now listed as a cause of neuropathy. Keep that in mind too.

Anybody else try taurine yet?
If so, results?

Maybe if you post this question in the chronic pain forum too you might find others who have been on taurine . It sounds like a fairly new med . That is good news if it helps reduce t.n.pain or any type of pain. I would be interested in what others say about taurine also .

A Warm Hello to All,

Just want to share a bit of info.:

In her book, The Wahls Protocol, Terry Wahls, M.D., mentions the amino acid Taurine boosts GABA production. (She also identifies NAC and lipoic acid as GABA boosting supplements.)

If you have not yet heard of Dr. Wahls and her research, please take a look @ terrywahls.com and/or do a search on her. She also did a TedxTalk, etc.

For the earlier poster in this thread referencing "mitochondrial functioning," please also see Dr. Wahls research.
Her first book addressed mitochondrial functioning, as does her TedxTalk: "Minding Our Mitochondria." (Forgive me, I cannot recall your screen name at the moment.)

Dr. Wahls is raising funds to do further scientific studies on her research.
She has an amazing story about her own recovery from progressive M.S.

To Our Healing!
DejaVu

P.S. MrsD- I, too, was recalling the Tourettes Community having used Taurine. Thanks for your reference to this. The magnesium taurate looks interesting. I am doing some research and may be attempting a trial for my PN and other chronic pain, as well as a neuromuscular condition, "myotonia." I may write about this elsewhere on this forum.

We have a fellow poster on PN getting over some form of muscular problem...He calls is Amyotrophy.
http://neurotalk.psychcentral.com/member.php?u=64553


But there are many problems that can happen with
muscles:
http://patient.info/doctor/myopathies

MrsD - Thanks for mentioning this. I will read up on the PN forum!
I am awaiting approval for DNA testing to confirm the type of "myotonia."
Thanks so very much for being you, MrsD!

mrsD-
thanks again for these links.
I will check in on the member's posts.

The link for myopathies is a great resource!

I have had extensive work-ups over the years, including nerve biopsies, etc. I have sensorimotor axonal PN and other conditions - autoimmune in nature - and have had these for many years.

In the past 3 years, I have started to show more clear signs/symptoms of an additional neuromuscular condition. Neurologists had witnessed it first-hand in the ER when I had been admitted to the ER one night. Lucky for me I could see a neurologist to the ER -- That came about by my telling the Attending P.A. I refused to leave the ER until I saw a neurologist, even though the PA had already written my discharge note. After a short, yet intense debate, I saw a neurologist. The Neurology resident recognized the neurological involvement and the need for assistance within 5 minutes of witnessing the signs, which were profound by the way. (No idea why the PA could not see anything wrong. Since electrolytes were fine, he wanted to discharge me. I could not walk, could not use my hands, etc.)

We've done more testing including repeated EMGs, NCVs, labwork (including repeated paraneoplastic panels). I have seen a specialist in Muscular Dystrophies. A few MD neurologists have consulted and they all suspect a "myotonic dystrophy." We will be doing DNA testing soon.

I am being treated for "myotonia" in addition to being treated for PN and other autoimmune conditions.

Thanks again, mrsD. I deeply appreciate your insights and your kind assistance.

To Our healing!
Deja Vu