[Raven_Lilly]

Hi All - I've recently be diagnosed with Trigeminal Neuralgia by my GP. I was having pain in my lower left gum near the back molars and went to visit the dentist. He took and x-ray and could find anything to be concerned about. After this the pain went away.. only to come back a few weeks later, but worse. The pain had travelled from my back tooth and gum, to my jaw, ear and left hand side of my face. The pain would last for a few minutes and be quite intense, but then stop suddenly. I had a MRI, which came back normal. I am taking Endep and it seems to be helping, but I still have a numb feeling in the back tooth. At this stage, do I go back to the dentist for a second opinion or should I just accept that this is TN and keep taking Endep? Has anyone else found a cause?

[kiwi33]

Hi Raven_Lilly

Welcome to NeuroTalk

The Sticky threads in this forum could well be a source of helpful information for you.

You can use the Search command (https://www.neurotalk.org/search.php) to find threads with information which could also help.

All the best.

[Malinda (Mel)]

Originally Posted by Raven_Lilly

Hi All - I've recently be diagnosed with Trigeminal Neuralgia by my GP. I was having pain in my lower left gum near the back molars and went to visit the dentist. He took and x-ray and could find anything to be concerned about. After this the pain went away.. only to come back a few weeks later, but worse. The pain had travelled from my back tooth and gum, to my jaw, ear and left hand side of my face. The pain would last for a few minutes and be quite intense, but then stop suddenly. I had a MRI, which came back normal. I am taking Endep and it seems to be helping, but I still have a numb feeling in the back tooth. At this stage, do I go back to the dentist for a second opinion or should I just accept that this is TN and keep taking Endep? Has anyone else found a cause?

Hi Raven Lilly, I am in the same process and it looks like I might have a diagnosis of TN as well. I still do not fully understand what I can expect, not expect etc.. but I am learning too. Good luck on your search, I will be following your posts for answers as well.
Mel

[Tashi]

I have TN but have not been diagnosed with it as it is all part of RSD/CRPS.
I recently had a crown put in and they did not do the proper blocks, so my mouth is in the flare.
What is settling it down for me is Klonopin. Also using warm salt water several times a day. Let it swish gently in the mouth and let it sit in there as long as you can do it. Also try warm sugar water. ( the why I cannot explain) A doc came up with it sucessfully as it is simular to a Mannitol drip used to be used sucessfully)

If you could get an anesthologist in a pain clinic to actually teach you to do your own sphnoid block would be very helful. Mine taught me in NM.