FAQ/Help |
Calendar |
Search |
Today's Posts |
|
06-24-2015, 12:57 PM | #1 | ||
|
|||
Junior Member
|
Hello,
I had right-sided MVD 8 months ago with a teflon pad put in place. Three weeks after the surgery, I had my first migraine. Since then, I get one about every three weeks. They always happen between 1 and 4 am and wake me from sleep. The headache pain is pretty bad and the vomiting makes it even worse. I get so sick that I can't go to work and lose a day sitting on the couch trying not to move. I am 6 years post-menopause and have no personal or family history of migraines. I can't help but think these new headaches are a result of my surgery. I had a new MRI last month. The neurosurgeon says my teflon pad and nerve look good and has no idea about the headaches. The only finding on the MRI was "trace right lateral cerebellar gliosis." I have no idea what that means. I have an appointment with a headache specialist in a few weeks. I'm also scheduled for a sleep study. In the meantime, I'd love to hear if anyone else developed post-op headaches and how you dealt with them. Thanks in advance, Cheryl |
||
Reply With Quote |
06-26-2015, 08:46 AM | #2 | |||
|
||||
Grand Magnate
|
Hi Cheryl . I am sorry you developed those headaches and the vomiting makes it all the more worse .I know about the vomiting issue but mine was not T.N. related . I think having a MRI was a very wise thing to have done and also going to headache doc . perhaps it has to do with blood flow at night when your are laying down is different then when you are up durring the day or sitting ect. make sure you write down things to bring to your apt. write down when you get them time of night what it feels like what position your in ...ie laying down on back with head propped up on pillow or sleeping on stomach with arm under pillow or how ever . Notes really do help even though it may seem silly it is not. I wish I could help you more but the only thing I can do is try to send a couple people who have had MVD to post here and also if you have not read Ellas MVD diary it is at the very top of this page her email is in a post on page 2 feel free to contact her. Let us know how things go and I am gonna try to get one whose had MVD to reply. Sending low pain thoughts and hope your coming apts bring answers and simple solution to those headaches .
Peace BMW |
|||
Reply With Quote |
"Thanks for this!" says: | Cheryl1818 (06-26-2015) |
07-13-2015, 10:00 AM | #3 | |||
|
||||
Grand Magnate
|
Hi again Cheryl1818 . I wanted to tell you that Ginger candy or just ginger has helped me in the past with stomach issues and vomiting. but side note that I was recently rx with C.V.S. (that is a vomiting syndrome usual with people who have migraine history in family.) and was put on amitriptyline .Soo glad for that med!! it has NOTHING to do with T.N. . but it took over 3 yrs to get a correct dx. far after gallbladder removed and scoped 2 times upper and 1 lower (colonoscopy ) and a absurdly ridiculous number of times to E.R. for iv hydration and med for stomach pain. so yes believe when i say I know about the vomiting part. . Sending positive thoughts your way and hope your week is a pleasant one.
Peace BMW |
|||
Reply With Quote |
07-13-2015, 11:02 AM | #4 | ||
|
|||
Junior Member
|
CVS would be the pits! I'm sorry you suffer from that. I keep ginger ale and ginger tea at work and here at home. They both help a bit. I also have zofran now and it stops me from vomiting during a headache, but it doesn't take away the feeling that I need to throw up.
Now that you finally got your CVS diagnosis I hope you can find something to put a stop to it. |
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (07-13-2015) |
07-14-2015, 05:00 AM | #5 | |||
|
||||
Magnate
|
Hi Cheryl,
Debilitating headaches can be the worst! I suffer chronic Cluster Headaches, 5-8 times a week now I am on high-dose Topiramate. Obviously when they strike, and for hours afterwards, I am unable to do anything they shake me up so much. I am not saying you have Clusters, the symptoms are different, so do not worry there. I just want to say I understand and sympathise, and hope you find effective treatment. Dave.
__________________
You and I are yesterday's answers, The earth of the past come to flesh, Eroded by Time's rivers To the shapes we now possess. The Sage - Emerson, Lake & Palmer. |
|||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (07-14-2015) |
07-14-2015, 09:27 AM | #6 | ||
|
|||
Junior Member
|
Thanks, Dave!
With chronic pain, sleep is a wonderful, peaceful, pain-free interlude and it really sucks to be yanked out of it so harshly with fierce pain. I am truly sorry that you have cluster headaches. I can only imagine how awful they are. My son was telling me about some kind of mushroom that people claim will reduce cluster headaches with once-a-month use. They're illegal, so no scientific studies have been done. I hope you have a good day with lots of happy distractions to keep your pain at bay. Cheryl |
||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (07-14-2015), EnglishDave (07-14-2015) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Migraines and post concussive syndrome | New Member Introductions | |||
New member – Post Traumatic Migraines + Slight Dilemma | Traumatic Brain Injury and Post Concussion Syndrome | |||
PCS migraines | Traumatic Brain Injury and Post Concussion Syndrome | |||
Is it Post Concussion Syndrome or Post Traumatic Migraines? | Traumatic Brain Injury and Post Concussion Syndrome | |||
migraines | Parkinson's Disease |