[miki 7]

I am coming from Israel to Boston Madical Center in a few weeks for a second opinion or a new treatment.
I heard that in Boston are the best experts for my desease.
I suffer 7 years from-Atypical face pain(outcome of extracted teeth,nurve) with no improvement (and even get worse) of any madicines.
couls anybody can recommend me an expert"s name or an expert"s clinic which speciliaze in Atypical face pain?
Have somebody heard of d"r Larry Lockerman?
Thanks ahead
Miki 7

[Vowel Lady]

Originally Posted by miki 7

I am coming from Israel to Boston Madical Center in a few weeks for a second opinion or a new treatment.
I heard that in Boston are the best experts for my desease.
I suffer 7 years from-Atypical face pain(outcome of extracted teeth,nurve) with no improvement (and even get worse) of any madicines.
couls anybody can recommend me an expert"s name or an expert"s clinic which speciliaze in Atypical face pain?
Have somebody heard of d"r Larry Lockerman?
Thanks ahead
Miki 7

I had lots of problems taking typical medications for this. I use a compounded cream that I get from a Compounding Pharmacy. My neurologist writes the prescription. In the cream is Gabapentin, Lidocaine and Capsaicin. I believe this special medication has provided for me the most help. It can be prescribed by any medical doctor, but it has to be filled by a special pharmacy. It didn't work at first, but did help a lot after perhaps ten days. I mention it because I also got bad facial nerve pain after a dental procedure. And I also had difficulties finding meds to help. This is different and not always easy to obtain, but it did help me a lot. It takes a special doctor willing to work with you and a specially trained pharmacist. I hope you find something to help ease your pain.

I also take by mouth a med very similar to Amitriptyline and Baclofen. These are tablets that I take by mouth. The cream is separate...and I rub that on the side of my jaw and near my ear.

Routine:
Cream with capsaicin, Lidocaine and Gabapentin
Amitriptyline Tablet
Baclofen Tablet

(In case you wish to talk with the doctor about this)

It has been a long, profoundly difficult road.

Don't give up!!!!!

[miki 7]

Thank for your advice.
can you tell me how this cream is compounded by percentage of each ingredients?
Miki 7

[miki 7]

Thank for your advice.
can you tell me how this cream is compounded by percentage of each ingredients?
This compound cream is not manufactured as a whole?

[Vowel Lady]

Originally Posted by miki 7

Thank for your advice.
can you tell me how this cream is compounded by percentage of each ingredients?
This compound cream is not manufactured as a whole?

The compounded cream is ordered by my neurologist, but must be filled at a special compounding pharmacy. This type of prescription may not be covered by insurance.

Here is the break down : Capsaicin .25 Lidocaine 5 % and Gabapentin 6%

Not sure exactly what this means. But I have found experienced Compounding pharmacists are very knowledgable. It comes in a single pump container. The pharmacist adds a cream that helps the medicine get absorbed into your skin (can't recall what that is called at the moment). I use it several times a day. It varies a little.

I was a little nauseas the first few days of using the cream. And it didn't seem to work at first. Then, relatively quickly, it began to really help.

As I mentioned, I also take some other meds by mouth, but they tend to be low dosage.

I do have weird moments of bad pain. I'm learning what my triggers are. But this cream has helped a LOT.

I'm a little sensitive to meds, plus some didn't work...it was very difficult. The cream has been wonderful and I'm grateful to have it.