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What were your first symptoms?

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Old 03-09-2018, 05:16 AM   #11
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Tied, your experience sounds dreadful.

I suppose TN affects everyone differently. Are you taking any medication for it?

My pain is electric shock like zaps. Like someone stuck an electric knife in my eye. I makes me jump. It radiates down my face right beside my nose and onto the top of my lip. Any movement is excruciating.....and forget about talking or smiling.

When this condition first reared it's ugly head I had no idea what was happening. It just came out of nowhere. And the anxiety of not knowing if or when it would stop was the worst part of it. Thanks to a sympathetic Neurologist (I know.....hard to believe) I was prescribed Trileptal and it helped immensely. Now, I will not be without that medication.

Like you, I learned what would set my TN off and I avoided those things (popsicles, anything very hot or very cold). I'd test the waters at first but quickly learned it wasn't worth it and there was no popsicle or hot chocolate worth the pain it would create.
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tied (03-09-2018)
Old 03-09-2018, 08:43 AM   #12
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Location: TX
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My neurologist ruled out a lot of potential meds due to drug allergies and sensitivities. For the 3 short weeks I was on carbamazepine I developed an itching allergy that ruled any drug similar to it. I am also sensitive to Neurontin (Gabapentin), allergic to Lamictal, and allergic to Mirapex. I believe the only drug left after my current Amitriptyline is Depacote. The only side effect I had with it was weight gain, but I have not yet tried it for TN. Right now I am ramping up on Amytriptyline. Carbamazepine worked pretty well and I was sad to see it added to my long list of allergies. I only made it up to 600 mg before I had to ramp down.
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eye, left, nerve, pain, skin

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