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Have transverse myelitis, and now TN symptoms

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Old 06-24-2017, 05:52 AM   #1
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Default Have transverse myelitis, and now TN symptoms

Hi. I am new to this (TN) forum and as yet have not been diagnosed. But what I took for dental pain a week or so ago has changed and morphed into a rather unhappy set of symptoms that point to the likelihood I have TN. I have already sent a message through to my neurologist at the M.S. Clinic to give him a head's up.

At first I thought I had another tooth dying. But the pain did not last, nor did it resemble the pain I have felt before when a tooth affected by my Crohn's diagnosis went bad (oh, yeah . . . I have Crohn's and transverse myelitis). But the pain was on both the top and bottom jaws on the left side . . .left side only. And then I began to feel it around my left eye, and down the left side of my nose, bridge to the tip. Then I experienced numbness in my lips while eating. Then vertigo while just sitting, reading. Rinse. Repeat.

My first thought was on Monday I will call and see if I can get dental x-rays done. But I already know I have teeth that are desperate for restorative work, and this thought scares that crap our of me. I simply can not afford the dental work I need. I will go if needed, but then I notified my neuro, to give him a heads-up before my next appointment in just a few weeks.

Then I began reading more in-depth. Other's stories of their experiences. Oh, here comes another pain. The last story I read described something very similar to my experience. At one point in her recounting of the early days she says "And then came the 'suicide pain.'" That's when I started journalling . . . and came here.

I have not been here in a while, but joined when I was diagnosed with transverse myelitis years ago. I thought the leg and foot pain I experience from that was bad. Mine often resembles what I think Medieval torture might feel like: binding, breaking bones, pulling nails, breaking arches. But now I have these new symptoms, and if they are not the dreaded dental issues I expected I would some day face . . . I know they have the potential to be much worse . . .

I could use prayer. And advice, direction, suggestions, and friends. I already lead a life in which I struggle to want to go on many days. I do have a therapist, and I will contact her tomorrow to tell her that we may need to back off what we planned to work on and focus on pain issues . . .

Not diagnosed yet, but with my other health issues, track record, and a heavy dose of realism . . . I expect my life will be changing soon. When the pain gets worse . . .

Any thoughts and suggestions, tips and ideas are most welcome.
We live in a rainbow of chaos. ~Paul Cezanne
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Old 06-24-2017, 08:48 AM   #2
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Join Date: Aug 2006
Location: Great Lakes
Posts: 33,515

You may want to read this post from this TN poster from the past:


Alot of interest in taurine has appeared in the literature in the past 5 years. This article is one example

Benefits of Taurine | Life Extension

Our poster here Kiwi... started taurine and it helped his tinnitus.

He recently upped to 3 grams a day for a arthritic shoulder attack and it helped that too. You can do a total forums search on taurine and find more information. I would caution against using it if you have confirmed gallstones, or take lithium. Otherwise it is inexpensive (I use Puritan's) and has virtually no side effects.
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei


Weezie looking at petunias 8.25.2017

These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With Quote
"Thanks for this!" says:
kiwi33 (06-26-2017)

dental, issues, left, pain, symptoms

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