Wow, I thought that was me writing. What you are sharing sounds like what I face. I live with RSD since 2008 and it is full body, taking over my life. I lost my job of 20 years in 2014 because I was taking off work. I have ssi, thought I was too young apprantenly not. I have been on disability with midicare and it truly sucks. This was a work injury mind you and it was my world and when I was let go it almost crushed me. So living with that as well and then living with all the progression that occurs with rsd, it takes over everything, even your mental status. What medication are you on? I was taking Levorphanol until medicare copay was $1,000.00 a month. now I have brain shudders almost daily. I am new to this forum and thankful for it as well. I hope you find some answers Clyde. Prayers!