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I would like to "understand TN better"

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Old 10-05-2018, 12:45 PM   #1
WishBestAll
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Default I would like to "understand TN better"

Hi, when I read all those forums and google about TN it is very scary and anxious. And confusing too. Therefore I would be really thankful if anyone (more is better) would give me a feedback on my questoions below:

1. how many (basic known) variants of TN exist? I know for TN1, TN2, ATN but I really dont know/understand what are main differencecs among them and what are characteristics of each of them?

2. I am really not sure how this frequencies of attacks and intesity of pain works? Is there really "no one in the world" who got cured or at least better in time? Do everyone just getting worse all the time until unberable point? I know TN is progreessive so attacks are more frequent and intense of pain higher every next time. But does that mean that if, for example, one gets his first attack already with intense of pain 10 and the second attack in a week later with again intense of pain 10, will than next attack be sooner, let`s say in 3 days and intense of pain will still increase to "over 10 scale"? So one will soon end up in 24/7 unberable pain "for ever" ? Is it not possible to have some attacks more "mixed" regarding freq. and intense of pain (lets say if 2 attacks were close, could than the third attack be less intense and delayed sometimes)? My English is not that good so I apologize and I hope I am understandable. I would like to ask if is it possible to sometimes have stronger longer attack in present time and than some pause and than weaker and shorter attack in the future?

3.I am really confused about drugs. May please some one group them and describe a main characteristics (and bad side effects) for drugs used on different TNs? Maybe which to avoid for sure?

4. Can TN patients have a "normal life" or not? No partys (no wine, beer)? No sport? No traveling? Etc.

5. Is it possible to cope with TN without drugs (sure one would need to make a lot of effort to do that with other "techiques")? Is there no "quick drugs" available <- to take pills only when attack occurs, no need to taking them all the time?

6.What are most danger dentist procedures for invoking TN?

Thank you very much in advance!
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Old 10-06-2018, 11:35 AM   #2
tied
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Originally Posted by WishBestAll View Post
3.I am really confused about drugs. May please some one group them and describe a main characteristics (and bad side effects) for drugs used on different TNs? Maybe which to avoid for sure?
Mirapex is used to treat fibromyalgia, so I already was on it before. It started causing RLS/PLMD, then nausea.
Carbamazepine is an anti-seisure drug. It works good, but I developed itching and was told to stop.
Gabapentin was prescribed for RLS/PLMD in a large dose. A smaller dose worked better, but it eventually caused me nausea so severe I had to stop. It diminishes your mental faculties.
Amitriptyline works well but causes insomnia and after long term urinary retention and abdominal pain, and this becomes life threatening.
Lidocaine patch works well but some brands have stickum that itches. It doesn't stick well on the face and gets tangled up in your hair. It can be used as needed but it's annoying unless you shave your scalp.
These are anecdotal for me and would not affect everyone this way.
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Old 10-07-2018, 03:32 PM   #3
WishBestAll
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Originally Posted by tied View Post
Mirapex is used to treat fibromyalgia, so I already was on it before. It started causing RLS/PLMD, then nausea.
Carbamazepine is an anti-seisure drug. It works good, but I developed itching and was told to stop.
Gabapentin was prescribed for RLS/PLMD in a large dose. A smaller dose worked better, but it eventually caused me nausea so severe I had to stop. It diminishes your mental faculties.
Amitriptyline works well but causes insomnia and after long term urinary retention and abdominal pain, and this becomes life threatening.
Lidocaine patch works well but some brands have stickum that itches. It doesn't stick well on the face and gets tangled up in your hair. It can be used as needed but it's annoying unless you shave your scalp.
These are anecdotal for me and would not affect everyone this way.
Thank you very very much on your reply and explanation. I really appreciate it. Even tho I am even a bit more scared of all those dangerous drugs now. But it is important to know "the reality". What kind of a drug is a Lidocaine (comparing to other anti-seisure & AD drugs)? Is it very toxic (side effects)? Are there any less harmful drugs? Is it possible to use some kind of medical drugs to suppress intense pain during the attack and than stop taking them (after attack)? Is it possible to avoid antidepressants (and similar anti-seisure pills) <- are all those anti-seisure (and AD) drugs the only way to deal with TN? What about patches and pills? What is more safe to use? Are all drugs available in patch or pill version, or that depends on type of drugs?
What happens if/when one can not take any of those pills?
I apologize for making even more questions, but I would really like to be as much informed as possible. Thank you once more and I wish you all the best!
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