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12-07-2020, 12:06 PM | #1 | ||
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Grand Magnate
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Lil Wolf.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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"Thanks for this!" says: | kinjo28 (12-08-2020) |
07-01-2021, 12:58 PM | #2 | ||
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New Member
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I was wondering if anyone has ever experienced a complete cessation of f the TH activity while suffering from the flu or flu related symptoms .
At this very moment I am just about getting over the flu that has lasted 10 days and all this time I can rub the lower part of the left side of my face without exciting the maxillary branch of the trigeminal nerve. I experienced the same result in December 2020 about the time I was coerced into the COVID ward of Royal Darwin Hospital Australia when I went to the hospital for a lung function test.I mentioned the ''deadened'' branch of the trigeminal nerve to the ER doctors on duty but they were not interested I was diagnosed about 7 years ago with TN and for a number of years was largelyunaware I had TN until about 3 years ago I suffered multiple firings daily for about a month that prevented me from chewing any solid food. One positive result was -I lost 6kg. Since then I am aware of the maxillary branch firing just below the surface of the skin .Periodically it will fire if I rub my left eye ,rub my left jaw or yawn but only for about 5 secs. I am 83 |
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"Thanks for this!" says: | Lara (07-04-2021) |
07-05-2021, 12:04 AM | #3 | ||
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Legendary
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Hi dookie,
Welcome to the NeuroTalk Support Groups. I can't help you with your Trigeminal Neuralgia at all because I haven't experienced it and only know about it mainly from people who have posted here over the years. I hope someone will pop by who has some answers for you. That's a very interesting response that you had when you had influenza. Maybe something to do with your immune response I guess. I did read online about people who had TN who also had auto-immune disorders. I think it can be a symptom of auto-immune disorders but that is fairly rare. I am curious, however, as to why you were "coerced" into the Royal Darwin Hospital's Covid ward. I hope you were not placed in there when you were Covid free. Were you a traveller? keep safe. |
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07-20-2021, 10:06 PM | #4 | ||
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Thanks for replying ,Laura. I did feel I had an infection .That may have been the reason I was escorted to the Covid ward at RDH-but only for a few hours while I had a lung x-ray taken, without having to leave the bed. No,I refused a covid test as I'm a covid skeptic and following my near death experience (with ARDS) sometime after being injected with booster shots of three vaccines before travelling to Thailand in 2003,I'm now vaccine averse. Very much so.
Today,I feel, the dreaded TN has returned as I am just about over another respiratory infection.It appears so far that TN in very localised on the upper jaw. When I was in the Covid ward I mentioned and demontrated, to two senior doctors that I no longer had TN .They were not interested. One has to adjust ,and keep on breathing .Keep walking as my father said when I asked him how did he manage to live to 99. |
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07-21-2021, 09:07 AM | #5 | ||
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Grand Magnate
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Welcome dookie .
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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09-29-2021, 07:56 PM | #6 | ||
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Quote:
I have just finished overcoming bouts -I think three-of respiratory infections during the last 8 weeks.While infected I experienced no TN .This is the third time it has happened in a little more than two years.I have mentioned this observation to two GP's -one expressed interest,the other no interest at all. Now one week post-infection no TN at all. From past experience no time to celebrate as the nasty TN is probably lurking just below the surface. During the last four weeks I have been ingesting one to two cloves of garlic a day as I have become intolerant of antibiotics.I can't see any connection between the intake of garlic and '' apparent'' disappearance of TN. Keep healthy. |
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10-23-2021, 07:27 PM | #7 | ||
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New Member
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Quote:
What with the sacro-iliac joint disfunction (every hour of the day without painkillers) ,COPD,and 6-12 monthly check- ups for lung cancer this is an exciting and interesting time of my life with a good computer ,fair-moderate internet connection with the world of knowledge at my fingertips. |
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10-24-2021, 10:17 AM | #8 | |||
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Senior Member
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Welcome, dookie!
I haven't been hit with TN but know of quite a few people who have found the pain very hard to take. I hope that you can find something that works for you.
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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