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09-27-2021, 09:16 AM | #1 | ||
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Newly Joined
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Hello I’m new here.
Just got diagnosed with TN in one side of my face 2 months ago. Been taking medication but it barely helps and it makes me very dizzy/drowsy. I have an appt for the Gamma Knife procedure in one month. In the meantime I’m going to try acupuncture. Has anyone had the same experience? I cannot chew food. For those of you that have a similar experience as me even for longer how do you cope? |
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"Thanks for this!" says: | Lara (09-29-2021) |
09-29-2021, 04:41 PM | #2 | |||
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Legendary
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Welcome to the NeuroTalk Support Groups.
I just wanted to suggest you try the Search feature. I just did and found many past threads/posts by using the keyword "acupuncture". p.s. just ran a search on TN forum here for Gamma Knife and there are a few other posts for that as well. https://www.neurotalk.org/search.php I don't have TN but I have had Gamma Knife stereotactic surgery for brain mets melanoma. I'm sorry you're in so much pain. I am wishing you all the best for your procedure. take care. |
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10-02-2021, 10:59 PM | #3 | ||
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I am someone who has tried many many things for TN . Acupuncture has been a regular tool. I ran up credit card till I asked my doc for help. He taught me a short routine to use daily. It was a wonderful gift. He was a wonderful GP. The other 2 main things I use are Charlottes Web medium strength CBD oil topically and I get mini steroid injections in my face , base skull and ear area. I can have the injections every 2 months. This routine works for me now. The weakness of my neck from my Myasthenia Gravis I have to be aware of. Bending down is so risky I have gotten used to cupping my chin with one hand when I do picking up. I had a massage therapist who did this amazing thing at end with my hair. It was like folding chunks slowly back and forth. It would stimulate this release thru my head. My acupuncture person was a trusted GP in our City. The point is it is very important to go to someone respected and trusted to do Acupuncture. Sculptor 44
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10-02-2021, 11:13 PM | #4 | ||
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Hi . Sorry I have poor eyesight. I read your post completely. There was a New NOVA special on Public Television on Cannabis this past week. They specifically noted CBD products on pain as seeming useful for neuropathy. I certainly know this. I at times put small amounts to a generous slathering of the oil on the left side of my face. If possible I would try it. These products are even available at my local HyVee pharmacy now. I do again stick with a product that is processed like medical grade. The GW Company in the UK is discussed on the NOVA piece. Sculptor 44
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10-04-2021, 03:36 PM | #5 | ||
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Thank you for the helpful info!
Hope you are well. |
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06-03-2022, 07:33 PM | #6 | ||
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New Member
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I have had a lot of success with acupuncture.
About a year ago, I was having daily pain for a month. It was worst when I would brush my teeth in the evenings to the point where I would skip brushing. I finally decided to get acupuncture and chiropractic (which I should have done earlier seeing as it is my brother that is the chiropractor/acupuncturist). After my first treatment, I brushed my teeth pain free that night for the first time in a month. Intensity and duration greatly decreased over the 8 sessions. A few days after the last session, I was in complete remissions for over a year... Until now. The pain started up again a week an a half ago. I am two treatments in, and I have been almost entirely symptom free for the last 3 days. I was still skeptical after the first round of treatments last year, but I'm hoping these last 3 days aren't just a fluke and that the acupuncture is doing the trick. |
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"Thanks for this!" says: | Lara (06-03-2022) |
02-23-2023, 02:47 PM | #7 | ||
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10-10-2023, 01:14 AM | #8 | ||
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I had to move plus my Breathing part of my Myasthenia Gravis has had me doing a lot more survival mode. There is a short version of an Acupuncture Routine he taught me. That’s the Daily routine.I can return and note the points that involves as it is too late now. Another thing I would see if your doctor will check you for Vitamin D deficiency as that makes any existing pain worse and causes pain. I would be in a lot more pain if my Rheumatologist hadn’t found this many years ago. She wants my vitamin D levels above 42 which I call farmer levels. My Dad a farmer used to be so brown! And make them tell you the number as there still debate about how much is enough. And as long as I get Sun which can include Tanning Bed my Pain does not rule my life as it did once. Sculptor 44
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