advertisement
Reply
 
Thread Tools Display Modes
Old 06-21-2022, 04:26 PM #1
Lily19710819 Lily19710819 is offline
Newly Joined
 
Join Date: Jun 2022
Posts: 4
1 yr Member
Lily19710819 Lily19710819 is offline
Newly Joined
 
Join Date: Jun 2022
Posts: 4
1 yr Member
Default New to this forum and suffering with neuralgia.

Hello all,
I am new to this forum, hoping to connect with others who have suffered or are suffering with neuralgia.
The shocking pain (literally shocking!) in my forehead and on the top of my head and behind my eye, all on the right side, is so debilitating. I collapsed at the weekend and had to go to the emergency room.
I am too afraid to wash my hair and my face and I feel like my life is over.
I am now on Tegretol plus another anti convulsant and a painkiller called Metamizol.
Can we talk please fellow sufferers? And I'd love to hear some success stories from those who have overcome this awful condition.
Thanks for reading,
Lisa
Lily19710819 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-21-2022, 11:25 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,686
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,686
15 yr Member
Default

Hello.
You can find our TN sticky threads with helpful info above this TN threads section.
Our site search tool can find keywords , medications etc in past posts also.
Search linked in my siggy .
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 03-20-2023, 03:09 PM #3
Rivertender Rivertender is offline
Newly Joined
 
Join Date: Mar 2023
Posts: 4
1 yr Member
Rivertender Rivertender is offline
Newly Joined
 
Join Date: Mar 2023
Posts: 4
1 yr Member
Default

I am onpy replying because i am not seeing anyone replying to you.....or I am unable to navigate successfully.

I am on here to find info so my wife and I can make decisions about how to treat the wildly debilitating trigeminal neuralgia. It's looking a little thin, but I am new here and will keep exploring.

My hoppe is that you did find some relief.
Rivertender is offline   Reply With QuoteReply With Quote
Old 03-02-2024, 09:14 AM #4
Wander3314@gmail.co Wander3314@gmail.co is offline
Newly Joined
 
Join Date: Mar 2024
Location: Florida and Massachusetts
Posts: 1
Wander3314@gmail.co Wander3314@gmail.co is offline
Newly Joined
 
Join Date: Mar 2024
Location: Florida and Massachusetts
Posts: 1
Default Tn 1

Hi, I have had TN 1 twice. I had it six years ago after a head injury to the side of my head. TN started immediately. I now have again. The pain is excruciating.
What I noticed was that I was causing the shocks if I wasn't careful. Things like brushing my teeth, touching my face, showering all caused shocks. After acknowledging this I realized that if I was very careful I might only have one shock a day. It is very difficult to change a lifetime of habits.
Therefore I would try not to have any shocks in three days. I accomplished this with difficulty and decided to keep going for eight days. After eight days I was curious to see what would happen if I touched my nose. My nose always caused the most horrible shocks. So I touched my nose and nothing happened! It was gone! I believe giving the nerve a rest helped it heal
So after two months I was finally able to shave my face. I hope this helps someone with a similar problem. I know every case is different but this worked for me. Prior to this I was investigating all options. Most seemed barbaric.
Wander3314@gmail.co is offline   Reply With QuoteReply With Quote
Reply

Tags
called, forum, neuralgia, shocking, suffering

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New to this forum and suffering with neuralgia. Lily19710819 New Member Introductions 4 06-23-2022 03:06 AM
Hi guys.. Im ramesh..im new to dis support grp Im suffering frm trigemal neuralgia ramesh_ped New Member Introductions 3 04-02-2014 12:09 AM
New member: Suffering from Occipital Neuralgia pawlpawl New Member Introductions 6 06-05-2009 06:12 PM
Needed? a forum for people suffering foreclosure and other legal problems - ConsiderThis Social Chat 24 09-05-2007 01:44 PM


All times are GMT -5. The time now is 12:12 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.