The neuroligist I was referred to in K.C. works out of Research
hospital. That is where he did my first MVD. I would never, ever
go there again for anything.
I spent my first night in ICU. At change of shift, I heard my nurs
(Male) giving report to next shift nurse. He said to her " I don't
know why they are here, I guess they wanted to come to the
Big city." It was me they were talking about. I was so upset I
cried. It hurt to hear something said like that. We had to travel
to K.C. because our small town doesn't have the capability for
the kind of surgery. As far as going to the BIG city, we have
been there several times already.
A little bit later, I heard the unit clerk reading my chart and
her and the 2 nurses laughing. They were laughing about the
Doctors notes about the surgery. It was embarrising and
hurting. He had made a real comedy in his notes.
When my night nurse came in ( to fix a kink in my cathedure)
I told her I could hear them all laughing about my chart. She said
" I don't know what you thought you heard." I told her "You
just don't want me to say anything". I asked her about her
her nursing ethics.
A short time later I had my first trigeminal pain. I just had
the MVD so thought that it must be normal for the first few
days of the surgery. I put my call light on and told the nurse.
Then I saw the nurse talking to a Doctor. He was shaking his
head like I'll take care of this. He emediatly(sp) came to my bed
side and told me that I was going to be sent to a regular room
and was ready to leave ICU . Oh my God, they thought I had
said that because I didn't want to leave ICU. what? the truth
was, I couldn't get out of there fast enough!!!!
When they took me up to my room, I noticed we were going
to a different room. My husband told them we already have a
room. They said "well we needed that room."
They crammed me into a small room at the end of the hall.
The over head speaker was right outside the door. Every minute
was a page for somebody. Very loud constantly. I knew why they
did this. I was so shook up over this incident. This was their
way of getting even, for saying "Your're just afraid that I will
say something."
I still have horrible thoughts about this. What did I do for
them to be so evil. They also kept giving me morphene when I
asked them not to. I think they thought if they gave me more
and more drugs that they could blame it on the drugs. My mind
was very clear during this time.
I hope none of you ever, ever go through an experience
like this. I never said anything but I could have.
It feels good to get this somewhat off my chest. I have told
no one till now and of course my husband was there so he knows
what took place.
TRUELY YOURS
Doodle bug7

I emailed you some of my story . I share your feelings and also share the mistreatment by "the system". all I can do is say how sad and sorry I AM.
send you a huge warm healing hug and share my story with you in email.
YOU ARE NOT ALONE!!!!!!! Many of us here and at the other place try at the least to show we care and that we all need eachother.
keep putting your feet one in frount of the other and when you trip or fall I will be around to help you back up sister friend.
low pain wishes
BMW p.s. check your email box.