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06-04-2008, 12:17 PM | #1 | ||
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Junior Member
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Well, got the results of the MRI. Nothing earth shaking or out of the ordinary. Spoke with my Doc regarding my dosage, he wants to keep it at 1800mg daily. Some days my side effects aren't bad, other days they can be a problem. (Yesterday I had to leave work early and finish the day from home. A couple of times I "came to" with the mouse still in my hand. In one episode I had been sitting like that for 30 minutes.) Oh well, time will tell.
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06-04-2008, 08:02 PM | #2 | |||
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I've been on gabapentin for almost 10 yrs. When I was first diagnosed with my TN back then...I was on 3600mg/ day in addition to 2000mg/ day of Vicodin. Talk about feeling spaced-out!!!! Was still having some breakthru attacks until neuro came up with the right "cocktail" and took me off the vicodin and added Elavil. Yes, it's known as an anti-depressant...but within 48 hrs I was totally pain free. Over the course of the next month or so, I gradually decreased the gab. until I was at a level that would just control the pain, nothing more..nothing less. I've been on 1200mg/day of the gab. for about 5 yrs now, and only needed the Elavil for about a yr.
My TN is the atypical type, the lower level constant pain..very few of the lightning shooting pains. Marilyn
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. We are friends for a reason. Sometimes we don't know why until we've been friends for a long time !!! Take time to laugh, it's music to the soul. . __________________________ Those who dwell among the beauty and mysteries of the earth are never alone or weary of life. Rachel Carson . |
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06-05-2008, 05:23 PM | #3 | ||
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Quote:
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07-02-2008, 12:24 PM | #4 | ||
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Junior Member
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Back again, still struggling a bit.
Currently am not able to chew, PERIOD. Only liquid or everything mashed. Have to be careful in the shower, no direct streams of water on the right side of my scalp or on the right side of my face. Have shaved my beard for the first time in 15 years, checking to see if shaving is less painful than shampooing. The doc has bumped my Gabapentin to 3000mg, this is the second day and there's no improvement. I'm scheduled to try for a total of three before getting back to him with the results. We're camping over the 4th, but I won't be able to eat burgers from the campfire, THAT's for sure. Nuts............. |
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10-21-2008, 04:04 PM | #5 | ||
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10-29-2008, 11:23 PM | #6 | ||
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My symptoms started about 10 days ago and consist of right jaw pain that is present 24 hours/day. I might sleep for 3 or 4 hours and then I wake up with the pain. The pain is dull and deep and is about a 6 or 7 on a 10 point scale. The triggers are talking or swallowing and if I do those I will have an increase in pain for a few hours or more. They can't get me in for an MRI for 3 weeks. My symptoms don't seem to be that of classic TN but possibly more closely related to the atypical TN.
Does anyone have any thoughts? I can't see how people live with pain like this. Thanks. |
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10-30-2008, 03:21 PM | #7 | ||
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Welcome to the forum, although sorry you need to be here. I have a mix of classic and atypical TN involving all three branches and both sides. I have a lot of triggers, but I also get a lot of spontaneous pain which occurs without being triggered. The duller, boring pains go on for extended periods of time with me, where as the classic lightening bolts are episodic and short lived. Some doctors opine that there is a pre-TN period which consists of pain similar to what you describe, and believe that it progresses to the lightening bolt/classic TN type of pain pattern. You've mentioned that you're waiting for an MRI, but have you seen a neurologist and have you been diagnosed? Part of the diagnostic process involves trying patients on an anticonvulsant and seeing if it stops the pain, as TN pain doesn't respond to typical pain killers. I had this condition for a long time before I was properly diagnosed. Prior to treating with meds, I didn't get a lot of sleep. Every time I tried to lie down, the pain would get stronger. This condition has turned my life upside down and living with it isn't easy. Hopefully others will respond and if you have some specific questions, post them. Also, check out the TNA website. There is a lot of good information there. Take care!
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