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Old 10-30-2008, 03:21 PM #15
EE03 EE03 is offline
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Join Date: Sep 2006
Posts: 616
15 yr Member
EE03 EE03 is offline
Member
 
Join Date: Sep 2006
Posts: 616
15 yr Member
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Welcome to the forum, although sorry you need to be here. I have a mix of classic and atypical TN involving all three branches and both sides. I have a lot of triggers, but I also get a lot of spontaneous pain which occurs without being triggered. The duller, boring pains go on for extended periods of time with me, where as the classic lightening bolts are episodic and short lived. Some doctors opine that there is a pre-TN period which consists of pain similar to what you describe, and believe that it progresses to the lightening bolt/classic TN type of pain pattern. You've mentioned that you're waiting for an MRI, but have you seen a neurologist and have you been diagnosed? Part of the diagnostic process involves trying patients on an anticonvulsant and seeing if it stops the pain, as TN pain doesn't respond to typical pain killers. I had this condition for a long time before I was properly diagnosed. Prior to treating with meds, I didn't get a lot of sleep. Every time I tried to lie down, the pain would get stronger. This condition has turned my life upside down and living with it isn't easy. Hopefully others will respond and if you have some specific questions, post them. Also, check out the TNA website. There is a lot of good information there. Take care!
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