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Old 05-18-2008, 04:18 AM #1
Lucy Lucy is offline
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Lucy Lucy is offline
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Hi, I am new here.

I believe that my husband has TMJ. He has had continual face ache for 3 years, has had xrays, scans, dentist, seen an ENT and told that his sinus path ways are clear and nothing else showed up.

Neither low dose anti depressants, antihistamines, nor pain killers have made any difference.

He has recently changed jobs and reduced stress levels which has not made any difference either.

I have read recently that botox can provide relief in some cases - has anybody here tried it and if so what were the results?

Lynlee
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Old 05-19-2008, 08:13 AM #2
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Hi Lucy,

I am sorry your husband is suffering. I have only had short term TMJ..it comes and goes, and isn't as bad as my TN so I have never sought further treatment for it. Sorry I can't help you more.

I did a search on this site ..maybe you can find some help there
http://neurotalk.psychcentral.com/sh...ndibular+Joint

Also here are some sites I found

http://www.tmj.org/

http://www.emedicinehealth.com/tempo...article_em.htm
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Old 05-20-2008, 03:49 AM #3
Lucy Lucy is offline
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Hi, I was in a mind warp and should have said he has TN - major face ache - so if anybody has had any experience trying botox could you advise - thanks

Lynlee
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Old 05-21-2008, 10:53 PM #4
Mylastnerve Mylastnerve is offline
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Hi Lucy,
I have Trigeminal Neuropathy, similar in most regards to TN, but with the constant, drilling, high-voltage line pian, instead of the jolts.
I have tried botox with some mixed results. The first botox that I had was a single, but very well placed shot, that helped for 2 weeks, but then put me in a major aggitated-nerve flare for 14 days straight. Hoiwever, to this day, the pain in my top teeth is significantly reduced. That shot was 6 months ago.
In April, we did a whole series of shots, down my forehead to the bridke of my nose, around my eybrow and along the top edge of my cheekbone, as well as a spot beside my nose.
This time, it seems to have simply diffused the pain, so that it now feels like little magnesium sparklers going off under my skin. I also still get the stampeding flares, that come on fast and strong, and require narcotics.
I would recommend it as one treatment in an arsenal of many, to treat this condition. So many of us get significant results from the anti-seizure medications, it may be wise to try this route as well.
To give you an idea of my medication doses, I am taking 110mg of nortriptyline (antidepressant)a day, as well as 4,800mg of gabapentin/neurontin (antiseizure med). These medication levels are high, but they allow me to hold down a job rather than crawl on the floor in pain.
I wish him all the best on his journey with this illness.
Good luck!
Mylastnerve
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