HI Melina,

Sorry to hear of all you pain. I am not sure if it will help you... I also have bilateral TN and ON. I do get the pins and needles feeling all over the back of my head, and forehead.. along with all the more painful things:eek: with my ON. Though I do have TN in all 3 major branches. But for me I can tell them apart, as my TN is classic, in that it is electric bolt type pains, and the ON isn't. Hope that helped a little. Best of luck on your new med!!! Nikki

Hi Nikki,
Thankyou, it does help knowing that someone else has bilateral tn and on as well at least i know this is normal but it still isn't very friendly!! i dont like the new pins and needles feeling! the pain is awful too but it scares me when i get a new symptom! its not fair on any of us to have to suffer with this horrible pain!

low pain wishes all
Melina
:hug::hug::hug:

No Melina it isn't fair at all, and I am so sorry you have to suffer too:hug:'
It took me a very long time to get here, but I am now ok with it all. I have even been grateful for the roads this pain has made me travel. If you ever want to scream or talk , I'll be here for you.

As a word of caution, with ANY new symptom, you should always call your doctor. So many things can cause the pins and needle sensations, it is always smart to get it checked.

I will be thinking of you and wishing your pain is kept to a low roar:hug:Nikki