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Old 11-16-2014, 03:47 PM #61
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I have AD from a botched root canal where the dentist overfilled my tooth and wrapped the filling (that had formaldehyde as the active ingredient) around my nerve. They aren't supposed to use that crap so they lied to me right past my chance to get it out before it became what it is.

I hear way too many stories about people who come out worse from MVD. PLEASE - if your pain came from a dental procedure please do not let a doctor do an MVD on you. You WILL get worse.

Not sure if this is the case with anyone in this thread. I saw it countless number of times on another site where people don't know the difference between dental injuries and the TN disease/syndrome. I had a neurosurgeon say that he could do one on me and when I asked him what a blood vessel pressing on my nerve in my brain had to do with a chemically burned nerve in my jaw, he changed the subject. I almost plowed him over getting out of his office. BEWARE.
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Old 12-18-2015, 02:22 PM #62
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I think that's what happened to me I was having a root canal and the song of Macy Gray came on this was about 11 years ago the dentist started dancing. I was laying there thinking what is going on. That started my nighmare. I now have anesthesia dolorosa also due to a bad surgery. That brunt my nerves beyond repair Lost my cornea that night also because they didn't patch my eye

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Old 06-01-2017, 11:18 AM #63
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Default Pns

My wife was recently diagnosed with AD. The Neurologist says there is nothing else that can be tried but medications which don't seem to be working. I've read a lot about PNS and it seems to have helped a lot of people. Does anyone on this thread have any experience with this? Who are the best candidates? Side effects?

Thanks.
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Old 07-09-2022, 12:59 AM #64
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Default Anesthesia dolorosa post mvd

Yes I had mvd in 2013 and have had Anesthesia Dolorosa ever since. I have tried the following WITHOUT ANY IMPROVEMENT!
Acupuncture
Deep brain stimulation
Cannabis under MD specializing in
Cannabis therapy
Ketamine IVs
Sphenopalatine ganglion blocks by MD and also self-administered
I have been taking Gabapentin 2400 mg a day but still have alot of pain. l do not want to take opiods.
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