Hi Sorry to hear that you are living with the constant pain . But Glad you found here to Neurotalk. This is a great place for all kinds of support info and just to know your not alone.
You could have Atypical or maybe even Occipital Neuralgia . You need to read the stikcies at the top of room here and find as much info as you can.Also You might want to post the same thing in our Occipital Neuralgia forum Here is the link...
http://neurotalk.psychcentral.com/forum105.html
Maybe see another Neuro Doc and write down questions or info you find here that descibes things you are dealing with. Have you tryed a never block at all?
I send low pain wishes to you.
If I can help in some way let me know.
PEACE
BMW