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#1 | |||
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Grand Magnate
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http://www.healthcentral.com/migrain...5.html?ic=4004
(Thanks Pono ![]() ![]() PLEASE inform your doctor with all and any concerns you have with your medications , risks and side affects!!!!! |
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#2 | |||
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Magnate
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That's scary stuff. In a way, it makes me glad I had such bad side effects I never stayed on an anti convulsant long term. I always read up on medications I take. Some of the side effects can be quite scary.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
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#3 | |||
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Junior Member
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Yeah, that is pretty scary- so now what do we take?? Since I rarely take the tegretol, I of course have not had this side effect, but if I have to start taking it daily I will have to see if there is another drug to replace it.
Is there anything prescribed for TN that is not on the list? |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
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#4 | |||
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Magnate
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Running out to work, but I believe that was a list of commonly used anti convulsant medications specifically.
I actually take Clonazepam (which is a benzodiazepine with anti convulsant properties) 'as needed' for my burning pain, since I can't take the anti convulsants/anti depressants as off label pain relief due to side effects. Clonazepam is highly addictive and habit forming. I'm only taking 1mg a day currently, but as my current flare seems to be calming down, I'm slowly reducing my dose of Clonazepam. Once you're on it for a couple weeks consistently, you can have trouble if you try to stop it immediately.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008) |
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#5 | ||
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Member
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I take a regular dose of baclofen, which is a muscle relaxer and works for my TN. I supplement it with Klonopin/clonazepam as needed when the pain really flares. It does knock down the electrical episodes. My pain occurs daily and I can't be totally off of meds.
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"Thanks for this!" says: | Burntmarshmallow (12-04-2008), dmplaura (12-05-2008) |
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#6 | |||
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Magnate
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Quote:
My neuro isn't pleased with the idea of Clonazepam, and neither is my GP. Neuro wants me to look into medical marijuana instead (since as a Canadian, that option is available to me potentially!).
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | Burntmarshmallow (12-05-2008) |
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#7 | ||
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Junior Member
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I've been inthe house for two weeks tryna get this under control. I went out for the first time today and couldn't stand to be around anyone. i am so angry right now and agiated. I've been on Trileptal for 2 weeks. I dunno don't think it's doin me right.
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Just a thought..... |
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