Originally Posted by Doodle bug7

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Anesthesia Dolorosa

Description

Anesthesia Dolorosa (AD) is one of the most dreaded complications of the treatment of trigeminal neuralgia. It occurs when the trigeminal nerve is damaged by surgery or physical trauma, resulting in numbness in the face, with pain present within the numb area.
Causes

AD is caused by injury to the trigeminal nerve, either deliberately as during ablative treatment for trigeminal neuralgia, or accidentally as during injury to the trigeminal nerve for some other reason.
Symptoms

The two main symptoms of AD are facial numbness (much like the numbness from a dental anesthetic injection) and constant pain. The pain is usually burning, pulling or stabbing but can also include a sharp, stinging, shooting or electrical component. Pressure and "heaviness" can also be part of the pain symptoms. Often there is eye pain. Cold increases the feeling of numbness sometimes making the face feel frozen.
Diagnosis

The diagnosis of AD is made when patients have an area of total numbness in the face that is also painful. Quantitative sensory testing is a test that confirms that the affected area is, in fact, numb, but this test is not necessary to make the diagnosis. If the painful area of the face has partial sensation, then the correct diagnosis is trigeminal deafferentation pain (for patients whose injury occurs during treatment for trigeminal neuralgia) or trigeminal neuropathic pain (for patients without trigeminal neuralgia).
Treatments

Unfortunately, there is no known effective treatment for AD. A multidisciplinary, pain-management-oriented approach is most appropriate. Some helpful strategies include anticonvulsants, antidepressants, opiates, psychological support, and complementary and alternative therapies. There are no good surgical options at this point, but motor cortex stimulation has shown some promise in preliminary studies.
The Pain Team

* Christopher J. Winfree, M.D.

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Originally Posted by Doodle bug7

Most of the time I believe my pain is going to do what it wants with my meds or without them. My eye has been a constant reminder that it is involved with issues of it's own. I haven't gone to a regular ophthalmologist, I see a Dr. who also does Laser surgery, retinal eye treatment etc. I have been going there each month for five yrs. Due to the dry eye effect, He put a plug in the corner of that eye. He took it out, and then he put a permanent plug in. My eye right now is on an even keel, although when it gets blurry I use drops.
The medications, Some of them I take three tiimes a day,
1. Hydroxyzine
2.piroxicam
3.Neurontin (Gabapentin)
4. Lyrica
5.Amitriptyline
6. requip ( for restless leg syndrome
7. paxil
8. Alegra
Dr. weaned me off narcotics ( methadone , oxycontin, morphine suckers )
I have more pain now without the narcotics but I was doing some strange thing. I fell out of my chair several times because I was leaning way over to the side. I would fade in and out several times each day. Anyway, I wasn't even safe during this time. Let me know how you are doing. I could probably answer some questions as I have gone through much.
Truely a believer, Dbug7