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Old 01-24-2009, 11:57 PM #21
NanaCat NanaCat is offline
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I'm feeling really pukey today. My migraine won't let up unless I keep on the Percocet (2 every 4 hours). But my stomach doesn't like it. And I'm hardly eating anything so that's not helping.

And then today I got (as predicted by the doctor but still...) pain in my face.

cat
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Old 01-28-2009, 08:59 PM #22
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Ugh Cat, I am hoping this is just adjustment period for the body and things will even out for you.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 01-28-2009, 10:53 PM #23
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Thanks.
Today is better. Working on the migraine (caused by a wrench to my neck in the OR while positioning for surgery apparently). I've gone off the Percocets completely even though they work really well. I don't like how I feel on them.

So, hot baths, chiro/massage on my neck and time are healing things up.

I am still surprised at the amount of pain I have with this surgery. When I had my AN removed 15 years ago I had NO pain, but no brain function either for about 6 weeks. This time, I have this horrible pain but the brain is just fine....starting to think that option #1 is more fun.

Staples come out on Friday.

CAT
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Old 01-29-2009, 04:40 AM #24
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Hang in there Cat. Everything gets better with time, at least thats what I keep telling myself, lol(and except for TN). All the MVD accounts I've read all seem consistent about the recovery. Its long and rough and especially hard on the neck muscles. I'm glad to see you post again. I've been wondering how you're doing.
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Old 01-29-2009, 10:09 AM #25
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Hi

I think I've crossed the line into upcoming wellness...

Woke up today with just a headache - no migraine
My balance is back to normal - no more falling down
Neck muscles are relaxing - yay

AND! (ta da!)

This is now day 5 of NO MONSTER IN MY FACE. I still have a lot of weird numbness and a strange thing going on with my chewing on the one side, but no extreme face pain since Saturday night (24th January). I'm almost afraid to post this, because my one fear is that the monster will once again reassert itself into my face. But what the heck, I'm feeling lucky today!

CAT
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Old 01-31-2009, 02:28 PM #26
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Quote:
Originally Posted by NanaCat View Post
Hi

I think I've crossed the line into upcoming wellness...

Woke up today with just a headache - no migraine
My balance is back to normal - no more falling down
Neck muscles are relaxing - yay

AND! (ta da!)

This is now day 5 of NO MONSTER IN MY FACE. I still have a lot of weird numbness and a strange thing going on with my chewing on the one side, but no extreme face pain since Saturday night (24th January). I'm almost afraid to post this, because my one fear is that the monster will once again reassert itself into my face. But what the heck, I'm feeling lucky today!

CAT
That's GREAT news!!! I'm so happy for you!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 02-01-2009, 02:08 PM #27
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CONGRATULATIONS on your new lease on life. That is awesome, I have been following the thread to see how you were coming along and just hoping to see a positive post from you. God knows, everyone who suffers from TN has just cause to expect the worst, but am so thankful to see you feeling better. I hope you don't mind if I continue to pray for you?

All the best for continued improvement,

Rhonda
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Old 02-01-2009, 09:21 PM #28
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Thank you Bassetcase, for taking the time to post.

I think I can now definitively say that the MVD has resolved the TM pain in my jaw. Where I continue to have difficulty is severe numbness/pain in the front area of my jaw. This is a result of the many, many surgeries performed on my mouth due to "dental issues" before the TM was figured out.

The neurologist thinks that the secondary mouth pain may settle down now that the big monster TN is gone. We'll see how that goes.

I am having a fair bit of difficulty with vertigo and subsequent nausea. My balance nerve on the RH side was severed 15 years ago when the acoustic neuroma was removed. With the MVD on the LH side, it seems as though the balance nerve on the left is affected, let's hope temporarily. As I no longer have a compensating nerve on the right to take over in the meantime. When I get into a large room with noise and lots of people, I am barely able to maintain my equilibrium. Hope that goes away soon!

Thank you for your prayers: I believe all positive energy, no matter how it is directed at a problem or a person in difficulty, brings results.

CAT
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Old 02-02-2009, 08:24 AM #29
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Thanks for your on going updates on your recovery. I will keep checking on you.

All the best,
Rhonda
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Old 02-02-2009, 09:20 AM #30
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Thank you!
CAT
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