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01-11-2009, 01:12 AM | #1 | ||
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Junior Member
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I hope that u have great results with the mvd surgery, I have atypical TN as well, but when I had my MVD surgery, the docs didn't find anything AND severed the nerve so I am left in more pain than I was before. I am not saying that I regret having the surgery b/c no matter the side effects, I would have tried anything, I 2 feel as if I could pull my own teeth! I just hope that the docs that u see gave u full info of the side effects of this type of surgery b/c mine did not and it was disappointing 2 find out that the pain that I am left with is not curable. Again good luck with everything and remember u will still feel pain after surgery, but if it works it will gradually go away!
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"Thanks for this!" says: | dmplaura (01-11-2009) |
01-11-2009, 01:41 PM | #2 | ||
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Junior Member
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I'm about ready to grab those pliers any second now..there's gotta be 5 or 6 rotten teeth up in that jaw, dontcha think? Thank you for your reply. I am being rather cautious due to the atypical nature of my situation. Plus, the surgeon is being very conservative as to possible outcomes. I *hope* to be able to post a success story. But in my gut I'm not expecting a 100% turnaround.....there were too many oral surgeries that have mucked around with the nerve endings at the front of my face to get a complete resolution. But I believe this is the best option for me. CAT |
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03-28-2009, 12:20 AM | #3 | ||
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Junior Member
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I'm scheduled to have an MVD op in 7 days with a surgeon who has performed several hundred MVD ops. When I asked him about severing the nerve he said that is the last thing he wanted to do as it would most likely cause more pain. Like you said, everyone should seek a tried and true expert in TN ops and ask good questions about the after effects. Wishing you pain-free days! |
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03-28-2009, 07:54 AM | #4 | ||
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Junior Member
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CAT And just for an update: I'm doing good. Some residual nerve damage at the front of my jaw from the dental surgeries. They are manageable. The MONSTER is GONE!!! |
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"Thanks for this!" says: | Burntmarshmallow (03-28-2009) |
03-28-2009, 05:01 PM | #5 | |||
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Grand Magnate
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I so much Love reading .." .The MONSTER IS GONE"
AMEN . PEACE BMW |
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03-28-2009, 08:44 PM | #6 | ||
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"Thanks for this!" says: | Burntmarshmallow (03-30-2009) |
05-03-2009, 06:19 PM | #7 | ||
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Thank you Tim.
How great to hear that you haven't had pain since May 2006 (is that the date of your MVD?). Yes, Miracles DO HAPPEN. We have to set aside our fears sometimes in order to achieve them, though. My Neurosurgeon said that the MVD is one of the best forms of treatment for TN. Yet his concern is that so many wait too long to go that route: they try every other treatment available first, because of the fear of surgery near the brain....And the odds of success in the MVD diminish after about the 4 year point...so many people are suffering and yet there IS a fix. I am amazed at my life post-MVD. It's BACK. WOO HOOOO Cat |
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05-03-2009, 08:59 PM | #8 | ||
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Junior Member
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tHAT'S GREAT!
They say MVD's are most successful if done within 4 to 7 years of onset of TN. After that, the success rates go down. My Neuro says "the sooner the better" and not just because its a better chance of success, but because the patient can get their life back". So glad to hear you got "No Pain, No Pain"!! woo hoo! CAT |
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"Thanks for this!" says: | Burntmarshmallow (05-08-2009) |
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