H J 50/50,
First I have to say BLESS YOU FOR THE JOB YOU DO. ((( Jude)) the story you share here must have been as hard to post as the actual day Thanks a bunch for sharing it... it answered some of my questions I had .I also got the post in feedback room from you. One single person can help 175 people wholy cow that is more then I would of guessed, My flyer did not have that on it just the fill out kind
I think you mentioned batteries for pace makers and stuff. I was told by my pain doc that batteries can be reused and also do they not have rechargeable ones now that recharge with a remote? That is the kind I am supose to get next but maybe I will just stick to the type of battery I have now till I know if at least the batteries can be donated and reused.
My 15 yr old is like your son was/is. I asked her when we were doing our girl after dinner walk one night and the answer came without a second thought.
She has her learners permit. driving and Mom is getting gray fast ha ha I wanted to know her thoughts about what ifs. and who has more what ifs then a teen eh? ha
I am glad to read that everything was done with care and respect
I have and others have been threw some pretty mean docs and dentists. and to have someone who been frount row and report care and respect is almost comforting. Thanks for being so brave that day and sharing how you feel . in a way it is kind of like sharing a little of that giving young man too.
YUP . . . God Bless us all

Thank you for understanding why I posted that story. I was not sure how it would be received, but I learned so much that day and as painful as it was to witness and imagine myself in those poor parents place........I was in true awe at how many people would be given a second chance or with living skin to graft so many people would be able to hold their heads up high after having surgery to correct something that could be life-threatening or just to help them look better for themselves be fixing a disfigurement.
The number I mentioned does have a lot to do with veins and skin. There is so much more than the larger organs that can make a difference to those who are gifted by others loss.
I hope that you are feeling better. I don't know your story, but I do know than you have a pace-maker. Is this a recent placement? How are you doing?
Thank you for responding to me and I hope we can chat again.
Sincerely,
Judy

I just have a battery not a pace maker . here is a site that explains what I have...http://www.medtronic.com/neuro/paint...imulation.html
the set of wires runs from under left arm where battery is to my back up across shoulder blades lower neck to leads on right lower back of head and right side lower jaw it zaps the trig nerve to confuse my brain of the pain signal It is for facial pain and so far as I know I am the first in U.S.A. to try this for face pain.but it dose not stop all the diffrent pains T.N. has to offer. IT is the best thing I have had a chance to have/try/use/be treated with however you wish to say it.
Thanks really for your reply it was very helpful to me. and thanks too I will feel better when the weather is better. evil winds and cold not for me.
Best regards
Tina

I just read up on AD. How painful does that sound. Ouch, I hurt just thinking of what you must go through on a daily basis. Had TMJ for a short while and I know that must be like a small needle poke in comparison.
Did you have a spinal and that is what caused it? I read that it is extremely rare.
You are brave to be a first timer for medicine, and I would do the same.
I am thinking of donating my body to science now while I can still boss them around, lol.
I was all set to go to John Hopkins to volunteer for mass iron infusions for restless leg syndrome. I started to decline in health and under the advise of my doc, I reluctantly said no. There was to be a lot of pain involved due to the fact that I could not take the meds that let me get night-time relief for the duration of the study and that could be months. If I got the placebo then I really would have been SOL. The thought of going back to the sleepless nights, standing against a wall and sleeping are all too easy to recall.
But I would be willing to assist in most any way I could for medical advancement.
My hat is off to you and I hope that you get the relief you so deserve and maybe even become a ground-breaker for people with AD.
If it works......maybe they will name it after you, it could happen.........
take care,
Judy
Oh, and by the way, the new teen driver can be as painful as any disease we get, but I am happy to say, MOM, that with all my worrying and fretting, my sons are 31 and 23 and have never been in accidents. So I hope that brings you some comfort also.
And yes, I still worry about them every dog-gone day.
Can't a parent get a break around here???????????? lol

well honestly I want to be know for my writing . being know for my neuro stim is the last thing I really care to have happen, but I still want to help. It is sorta like a panther out of a cage and back in its natural setting. in that I meen I dont want to give up any inch I have gained with all this or make any silly mistakes with the next steps and every thing is lost and then yikes on me. I start all over in some other direction . we need advancment for controlling all types of T.N. a cure even better.
I got this from accident broke my jaw and have 3 plates in lower to hold together and my lower right trig nerve is snapped in half. accident in 1999 my neuro stim I have had since July 2002.
New Teen drivers are a fine way to instant gray ...ha ha.
The olny time Moms dont worry are when all the kidlets are at home at the same time.
Thanks enjoyed the chat with you hope to chat again soon.
Tina

p.s called in work sick today glad its slow there.
another question on organ donor topic

I now wonder since I travel what happens in other states . There is no cost to the family of the one donating where I live in fl. but is it the same in every state nation wide or is it state by state

thanks for the web info
http://www.organdonor.gov/faq.html

still nothing about implanted medicaL devices and if they can be donated or reused???
my pain doc said yes batteries can be but some say no not at all ??? dont know where to search on that question?
all over i guess ha ha
thanks everyone for sharing and all the help given .

am getting info that batteries CAN be reused will have some solid words on that soon. thanks sooo much hey jude50/50

yes for sure batteries can be reused as long as the seal has not been damaged . also got info that there will be in the near furture a hightech Big machine to make the medical devices all clean and stereil ??sp?? before reuse.
much appreciation eveyone for the input and commets.

today at work I met the mother of a boy 18 who had just passed away from an auto accident . There is a write up in tuesdays local paper about it. The doctors approached her and asked her to consider donating his organs. She agreed to donate her sons organs knowing the son durring his life always did what ever he could to help others,so knew he would also help in this way.
... like I said I met the mother at work, I work at a hotel and she was there to see family that were staying from out of town. she came around the corner upset,crying.i asked if I could help what was wrong.. she hugged me and we started talking she told me about her son and I told her how I just became an organ donor myself. Today was a sad day but also ,TODAY WAS A BLESSED DAY.
Peace and Love
Burntmarshmallow...Tina

i am an organ donor, and have known that i wanted to be one since i was 12.
My mother has 5 brothers and 3 sisters. all of her sisters, and 2 of her brothers have a hereditary kidney disease that ultimately means transplants or dialysis. My mother donated one of her kidneys to her sister, and another sister has had a transplant from a cadaver but still suffers from complications. Another brother has donated a kidney to another brother, and both are doing well. three down, two to go. they are still waiting for transplants.
every one can help another human being in some way. organ donation is the gift of life. i can't find a reason not to be an organ donor. CAN YOU?
haha that sounded so much like an advertisement for organ donation.
but its true. ill do it all: tissue, organs, whatever. (i haven't committed to giving my body to science, but with tn, its probably not far off.)
hope this helps....

sarah