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Old 06-11-2009, 01:32 PM #1
thedspeth thedspeth is offline
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Default 10 Weeks Post MVD

I'm still pain-free after 10 weeks. I feel I've been blessed with a second chance at living pain-free, so I feel obligated to pass on my good fortune in the way of support through this eCommunity which has provided lots of good info and support.

I don't have MS or other ailments; just TN. I suffered with TN for about 7 years; the last 2 years were extrememly painful. It slowly shut me down due to the pain. I ramped up Tegrotol to 1600mg/day. It worked for about a year at 1000mg which was wonderful. Then my body got used to it I guess or the nerve continued to detriorate. At 1600mg I had no short term memory, super sleepy, groggy, walked around like I was on a thorizine drip. Finally had a Gamma Knife treatment on Sept. 26th of 2008. After about 30 days of the pain ramping down, I was pain free! Unfortunately it only lasted about 60 days; the pain returned worse than ever! I had the MVD surgery on April 3, 2009. I was more scared of the recovery than the surgery itself. The operation lasted about 2 hours, 12 hours in ICU followed by 2 days in regular room, then released. No jaw pain from moment I woke up. I had pain from the incision but none from jaw and still none after 10 weeks.

I recommend having an MRI done and having a neurosurgeon and only a neurosurgeon analyze it. They have the best 'eyes' for spotting issues and the experience of 'seeing' the issues firsthand. I could have saved myself years of pain if I had done this sooner. Sorry for the long post, but I hope my experiences and amazing good results from MVD help someone out there. I will gladly answer questions in here or via direct email if you prefer.

God bless you all with pain-free days ahead.

Todd
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Burntmarshmallow (06-11-2009)

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Old 06-11-2009, 05:40 PM #2
EE03 EE03 is offline
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I'm glad you've had a successful outcome. Enjoy your drug free life.

Take care, EE
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Old 06-11-2009, 05:43 PM #3
NanaCat NanaCat is offline
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yeehaw!!!!!!!!!


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"Thanks for this!" says:
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Old 06-18-2009, 03:26 PM #4
thedspeth thedspeth is offline
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Quote:
Originally Posted by EE03 View Post
I'm glad you've had a successful outcome. Enjoy your drug free life.

Take care, EE
Thank you EE03. I wish the same for you.
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Old 06-24-2009, 11:30 AM #5
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Wondeful!!! Thanks for sharing...
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Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire


dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
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Old 06-25-2009, 09:46 AM #6
Mylastnerve Mylastnerve is offline
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Todd,
Great advice regarding having a neurosurgeon evaluate your MRI - my neurologist always talked about my "clear" MRI. When I finally got to the neurosurgeon, he did a "thin-slice" MRI, and found a bunch of vessels around it.
Thanks,
MLN
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Old 10-25-2009, 01:12 PM #7
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So happy to hear your news. I'm 2 and a half weeks into recovery after a MVD. Here's hoping I'm still pain free once I'm off the meds. It will take me 2 months to taper off.

I had an MRA before the surgery, mostly to rule out any other cause of the pain. The imaging showed two compressions (though a previous one years ago had not shown any). It was nice going in knowing there were some there. My neurologist told me the other day that I had both a vein and an artery pressing on the nerve. He thinks I made the right choice to have the surgery. None of the other options seemed reasonable for me at this point.

Jean
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Old 10-26-2009, 09:03 AM #8
mean laureen mean laureen is offline
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Smile post mvd surgery

I just wanted to let you know that I'm very happy for you and that your feeling better post surgery. I also had an mvd done on June 16th of this year so I am 19 weeks post surgery and feeling great. Still tapering off of the medications though but hopefully I will still be pain free after off of all meds. I hope you continue to be pain free also!
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