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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Trigeminal Neuralgia (https://www.neurotalk.org/trigeminal-neuralgia/)
-   -   Radiation Exposure from Gamma Knife... (https://www.neurotalk.org/trigeminal-neuralgia/97231-radiation-exposure-gamma-knife.html)

Nik-key 08-21-2009 01:08 AM
Quote:
Originally Posted by wavegeek (Post 550369)
Has anyone had the gamma knife surgery and in doing so worried about radiation exposure? I know it is extremely high in order to destroy the nerve. I would love to know how people deal with and approach the fact even though the radiation is highly targeted, it is still approaching high theapuetic levels. I have pain in both sides of the trigeminal nerve and may need one dose to each side. The idea of that much radiation freaks me out to point I am consdiering Rhizotomy instead.

Thanks!
Alex

Hi Alex, I have bilateral TN, ON and AD. I have had the gamma knife on both sides for the TN. Sadly, it did not work for me and left me with the AD. BUT! There are many who find permanent relief.

With everything there are risks. Each of us needs to make these very personal choices. The best thing you can do is to continue to research. Knowledge is power and YOU are your best advocate.

I am so sorry to hear you are dealing with this horrific beast.
((hugs of understanding)) Nikki


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