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Old 09-25-2006, 10:59 PM #1
Sydney Sydney is offline
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Question Ideas for FM and RSd supplements

I haave everything: RSD, Fm and Meralgia paresthetica. I wrote a long post a few days ago under the thread /supplements for FM and magnesium. In tha thread I detailed the nature of my condition. Extremely case of central nervous system disorder and allodynia. EX: Was on my feet at a part for a few hours on Sun. (because my back wasn't hurting too badly). Usually I sit all the time. Now I triggered off the FM and or RSD in soles of feet, toes, ankles up to my knees. Then today at the dentist I just had t rest my front teeth on a piece of plastic to have a panoramic x ray.(1 minute) Forget it - major trauma to the teeth. They now are terrible pain . I feel like the bubble girl. Apparently I am told my pain gate opens and stays open. Other people who have similar procedures or have foot pain after being on ther feet - it usually goes away. My pain gate stays open. RSD is ofte referred to as te "wind up" syndrome as your body winds up after the most minimal activity. touch, etc.
Maybe Mrs D has some ideas for FM and RSD. I have pain throughout my entire body - head to toes. Please check out my thread under supplements for Fm and magnesium and you will see the extent of my conditioin and my many attempts for pain relief from medical docs as well as naturopaths, acupuncture, magnets, etc. etc.
Now someone is trying to convince me that the answer is taking carnivora and lamanica with a lymph drainage product. Any ideas on that?
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Old 09-26-2006, 07:34 AM #2
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Lightbulb Hi Sydney...

Sorry I haven't been back sooner, but I had to work this weekend.

I don't know what carnivora is...looking it up:
I see now... this is an immune booster. I don't see how it would be an agent
to reduce pain. If you have any autoimmune issues, I would be leary about it.

But I do want to respond to your pain questions. And ask a couple too.
Does your pain resemble NERVE pain, or muscle pain/tightness?

Here is a really good article on regional pain syndromes:
http://www.rsdfoundation.org/en/Prev...RSD_Intro.html
Check out the Vit C information!

You know, nerve pain can also be a sign of low B12 status. And some studies
have found low B12 in the spinal cord fluid of patients with fibro. So taking
the methylcobalamin we discuss here might be an option for you. I'd also take it with a B-complex, so you get folic acid and B6 too.

The NMDA receptors are run by calcium. Magnesium blocks them to some extent and reduces pain signals. So taking a magnesium supplement if you do not eat foods high in magnesium (certain whole foods/nuts) may help too.
I just saw a post on RSD here that someone is getting a magnesium infusion from their doctor.
http://forums.braintalk2.org/showthread.php?t=1348

My magnesium thread has a link in it for a magnesium cream from Kirkman labs, and that might help you to rub in to specific sites, as an experiment to see if that works for you.

If you feel you have MUSCLE issues from the Fibro...then I would suggest a trial of l-carnitine. This amino acid works well for me. Sometimes it is hard to distinguish the type of pain you are having. I remember years ago the aching in my muscles (before I took a good look at supplements/lifestyle changes), was thought to be Fibro by my doctor. But luckily it is not.

I do have some food intolerances, gluten, and recently I discovered orange juice(citrus) contribute to my pain/arthritis in my knees. So sometimes an elimination diet can be very revealing to the patient!

The anti-inflammatory diet is basically one that improves and reduces excess cytokines which cause pain. If you are interested in this idea, go to the link I provided in that thread. You can improve inflammation by taking fish oil supplements. Since you do not take many drugs (or blood thinners), you could try 3 grams a day in divided doses, with food. This is a jump start to the eating program of the anti-inflammatory diet. Curcumin and ginger are also
nice to add for their effects.

I'd like to add also that some people are posting now (at the old forum) that they had fibro issues, and their doctors did Vit D testing on them and were found to be very LOW. So you might want to have your doctor test you too...this would then be correctable.
There is a vitamin D thread here, with articles you can read as well.
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Last edited by mrsD; 09-26-2006 at 07:52 AM. Reason: adding information...
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Old 01-01-2012, 09:43 AM #3
KamasPrairie KamasPrairie is offline
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Go to a site such as Mountain Rose Herbs .. click on oils .. then T for Tamanu Oil. Under folk lore .. it cures sciatica, septicemia, cuts and bruises, joint pain etc. I use it all the time.

Take the list of all drugs you have used in the last five years and run a side effect chart on all of them. I never take over three drugs at a time for myself or my wife who I am taking care of.

I run tests on my goats, chickens, horses and dogs with herbs. I know what will cure and what will not. There are no side effects with herbs and you can't over dose .. but you can under dose. Hope this helps.
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Old 02-06-2012, 02:36 PM #4
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Default Supplementation and Diet and Pain

I have weaned myself to ONE pharma but have a fistful of supplements I take. I have allergy pills when I need them and benedryl for bees, ant and spider bites. I have pain pills, non-narcotic, in emergencies only. I try to stay on the 4F diet by Dr Hooshang Hooshmond, though life is short and when I am doing well, I forget what makes me feel bad; then I have to backtrack and get my body right again. But I also find not every diet is right for every person, though I have found eliminating sugars and gluten help many. The problem in encouraging a healthier diet is cost, but I believe it is better to eat less, better food, than more body killing, chemical laden, crap. Usually what works for one may not work for another as we ALL have chemical signatures all our own, like fingerprints. That includes gut flora. Exercise, encouragement, and diet make a major difference in pain. I've had RSD, CRPS Type I, for 17 years. I've had pain so bad I wanted to take my life, but I have work to do here so I endure it. Another major factor is doing what you like to relax your mind and release those endorphines. I like to ride my motorcycle but it's been almost 3 years because my hubby broke his back-maybe this summer......and my faith. Without faith, life just isn't worth the time to me......and music, and art, and reading. So many people let what they have live through them or they are identified by what they have. People ask me about my voice, my "spasmodic dysphonia" and unfortunately can sometimes identify me, but I don't let it take me over. It's in my life, it is not my life. Talking about what you have and what it does to your body to others isn't always the best idea. You hear what you say about yourself and it reinforces what you think/feel about it. Sometimes I don't even tell the doctor unless it's important. Unless it is specific to my pain or stopping my pain, I take care of it myself. Especially if I know I caused it by doing something like eating junk food. So, get your gut flora right, find something that makes you happy, and do some exercise, even if just a little. If you rest on your keister too long, you WILL lose whatever it is you are not moving. better pain in a limb you can still use than pain in a limb you can't.
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Old 02-06-2012, 11:58 PM #5
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I have tried l-carnitine and it hasnt really worked quite well. I took it for 3-4 days, but everytime i take it, i feel somewhat off. certain supplements might do that to me, but i didnt think l-carntine would
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