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-   -   b12 and flare ups (https://www.neurotalk.org/vitamins-nutrients-herbs-and-supplements/2040-b12-flare-ups.html)

mrsD 10-01-2006 07:05 PM

Soy....
 
Soy is not "bad"...but people with food intolerances may have an
intolerance to soy as well. Not everyone, of course, but some do.

Heavy consumption of soy, can lead to thyroid issues...and that is still
controversial. Soy contains phytates which complex out certain minerals, like zinc. Just using it occasionally is usually not an issue.

If you are lactose intolerant, then Lactaid milk is an alternative. It is ultrapasteurized as well, so its expiration date is much longer, for those who
don't use it alot, and find regular milk goes sour fast.

It is hard to say whether you are lactose intolerant or caseine allergic by your posts, Laura.

lahgarden 10-02-2006 04:24 PM

getting younger every year!
 
That is very funny Buttons. You crack me up.

Seriously, what are the myclonic attacks like for you?

Yes, out of the five core employees at the nursery, two have gotten lymes and one of them got it twice.

I've had deer ticks bite me, but never a rash. My last spinal tap got sent with the blood to California, one of the two best testing labs in the uS......I'm kinda pretty good with the thought that it's not lymes, but I will look into it more.

Have you ever had deer ticks biting you? Any rash? Fever?

I'm glad I found this place, it has forced me to re visit the vitamin issues, and get back on track. So far so good, but I have not re-introduced the SAM-e, and may not.

My DM, said not to add b3 unless I spoke to nuero, mentioned overloading my kidneys.....probably a good idea.

I'd also like to add the Omega 3,

Which is the best Omega 3 to get?

I am so overwhelmed by the gluten site, but I have written down the blood tests and will ask for them to be done too.....or should I just start experimenting with the diet? And not put wheatgerm (more good b vitamins) in my soy yogurt EVERYDAY!!!???

o brother.

But I am starting to understand that perhaps with the milk problem, maybe this has been going on for a long long time.........

Question:

Isn't calcium one of the receptors that b12 must bind to in order to be available??????????? And so if I only eat cheese once a week and no milk since 10/1990..........could that be a clue as to the culprit?

The soy yogurt is something very new for me, I've been eating it for about
six months and I don't feel any adverse affects........that I'm aware of.

I am going to look up the caseine allergy, I've never heard of that thanks!

laura

turner 10-03-2006 01:35 PM

Hi lahgarden
 
I thought that I would tell you what happened with me and food sensitivitys.
I've had IBS for most of my adult life, it was really not that big of a deal. I kinda learned to ignore it. I ate mostly healthy foods, next to no juke, organic etc. Then in 1997 my mom bought my husband and I a bread machine, that was great, we ate bread in a variety of ways, eveyrday.:D :D
Over the next couple of years I started gettting more IBS issues, headaches, dizzyness, tingly hands, face, feet, mouth. Shaking inside,like small temours, wierd disassociated feelings, lost in space, I call it:D And lots more stuff, I evently had to take a leave of absense from work, I've never been able to return. :(
I happened upon this site a few years ago while doing research for MS, this is what the drs thought I had. I wasn't testing postive for anything. Anyways I had persivered with this one dr for a good 4 yrs, then I left him, because he wasn't helping me at all. I then went to a new dr and I was able to get my medical file in my own hands. I read that my B12 was 243, I cried.:( For the last 4 yrs I could of been taking B12 and healing myself, but the drs was so dumb, he never even mentioned it.:mad:
Well it was through this site that I learned that my IBS was gluten sensitivity, one week going gluten free, my energy level went way up, 4 weeks into the plan, I learned that milk also made me sick, and that soy gave me a bad headache and pain all over my body. Little by little I am feeling better, I know that it will take years to repair, but at least, I'm repairing.:D
I hope my story inspires you to keep looking and learning, take care, Patricia:)

lahgarden 10-03-2006 05:04 PM

turner
 
I'm so sorry you have been through it huh?

the b12 sounds all too familiar. My first test was in Sept 05 and not till Jan 06 did anyone do anything about it. I was already sick for three years.

My first neuro was a scaredy cat and just kept telling me it was "too early in the disease to see it"........I asked on a peice of paper? "yes" Well I'm not a peice of paper I felt like saying.

Then I asked which disease? and she made a frowny face and said "O there are so many to choose from." and fibbed about my lp being normal.

I too didn't know till I got the reports.

It's awful to be robbed to health and time and Lord know's what else.

I read the book Could It Be B12?
But everyone in the book made such rapid progress.

I'm glad you shared your story.
I am gonna start collecting info on the milk intolerance and gluten to a computer document so I can sift through it. Like I started with the b12.

Do you take shots of b12? What other vitamins to you take?

Were you ever dx with subacute combined degeneration?

thanks for listening.
laura

rose 10-04-2006 04:31 PM

Progress
 
I haven't read the book, but it is common for people to be diagnosed when certain signs show up (megaloblastic anemia or obviously low B12 serum). Those who are caught early enough will almost always make rapid progress and repair the damage within months.

However, those who are prone to more neurological damage, and are not diagnosed or treated until much more severe damage has occurred, have a much more difficult recovery and the likelihood of much or some damage being permanent.

In those cases, progress can be difficult and occur over several years.

rose


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