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Old 12-02-2006, 11:30 PM #1
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OneMoreTime OneMoreTime is offline
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15 yr Member
OneMoreTime OneMoreTime is offline
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Red face Mrs D -- L-Lysine & CFIDS: can you help me?

Dear MrsD ....

May I ask you for a favor?

I've asked about this before at OBT and the other day here - both times on the CFIDS forums - without any response at all....

So I bring this to you...

The magazine article I speak of was in a Saturday Evening Post, probably about 1993 - perhaps 94. I have done searches in the past (not in the past couple of years), and found nothing... but the fact that it has SO CONSISTENTLY helped me thru the years whenever I've had relapses.

When I say that mine is triggered by rejection, perhaps it is simply that THAT type of emotional impact is the harshest type of wound I can sustain.

Yesterday, I used a new callous file to buff the harsh edges off the capsule-shaped tablets and the went down easily -- but that gets tedious given that I am currently taking 6000 mg a day (6 tablets) and sometimes have to take up to 18,000mg a day (common years ago -for a few weeks- when I was my sickest and it took that much to fight off a relapse)..

Two things -
1) do you know a brand that is "nicer" (I found one years ago, but don't recall the brand).... and
2) do you have anything to add to my story, any research or antecdotes?

I know that L-Lysine not being a drug to be patented and sold for any particular profit, there is ZERO financial incentive for expensive research.... but I am very interested in spreading the word - for if it worked for that guy for years.... and it worked for me for years.. then there HAS to be something to it. Can't just be the two of us.

Teri

NOW HERE IS THAT ARTICLE FROM THE OTHER FORUM
After several years of barely making it along with my CFIDS, many years ago, my mother sent me an aricle about a man who had been disabled for years with CFIDS. I've forgotten now how he got onto this, but it was all about the imbalance between L-Lysine and another aminio acid.

For instance, when you pig out on peanut butter, a can of cahews or similar nut binges, someone with CFIDS (at least people like him and like me) have the overload of this other amino acid either deplenished or just overwhelmed in amount .... and the symptoms would creep in almost immediately.

As to the nuts (especially) or heavy regular amounts of other high level foods, thru these many years, I have often had a relapse, then started thinking back and suddenly realized what triggered it.

For many years, I took a large quantity of L-Lysine prophalactically. But with years of journaling and charting, I discovered what it was that triggered CFIDS relapses (those not related to foods). EVERY LAST TIME I would be rejected by someone who meant something to me, I would crash and burn, with low-grade fever coming on within 72 hours or less.

Over the years, therapy helped me understand the traumatic roots of those feelings of abandonment, to see things in different ways, to not take things as deeply in -- learned to accept and let go, and taught me not to overvalue relationships that should never meant that much to me to begin with. But learning to let go -- that was the biggie.

But when something pops up on me, it can still lay me low.

But recently, in the past six months, I had experienced a great deal of rejection from my children -- and as all you moms know, having an adult child do that to you stings like a nest of scorpions. And this time, I didn't get the fevers, but I got outbreaks of every last quiescent viral infection I harbour in my body. And finally I went and bought myself a new supply of Lysine. And I was finally getting a bit of handle on it,

but since my sister's death two weeks ago, I've once again begun a low-grade fever... and viral breakouts are starting again .... So it is pretty obvious I need to really up the dose. And they are SO terrible to swallow - likely to catch in my esophagus. I need to find a source that provides them rounded and maybe lightly coated.

Does anyone know where I can find such meds that don't cost an arm and leg?

Teri
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