Hey all. Jim's legs are starting to have some changes. They are not crossing over each other in the morning and they actually feel lighter. The only downside we can see right now is his butt hurts more. We're going into week two so we'll see. He can also set his right foot down better, the Achilles heal is loosening up a bit. The neuro thinks the bone may have fused a bit so he may not get it down completely but hey, we're hopeful.

My weight is stable, no loss, no gain. I go back and forth. :rolleyes:

sandy, that's encouraging news. does his butt hurt from sitting and being in the chair? or is it something else. and hey, stable is good. it's so easy to gain that stable is very good.

i took my friend to the hospital today for HER back injection. i ran some errands and came home. it's like 95 degrees here. too hot. i've got my AC blasting. hope there's no power outage. as soon as i stop sweating i'll turn it down. try to just use what i need.

have a great wk/e all.

We're not sure Judy. It didn't hurt until he got the Botox. Weird huh?

hi all,

hope you had a good wk/e. lenora & i sat for 3 hrs. we almost could have stayed for lunch too! we always leave an extra tip because we take up the table for longer.

yesterday i stayed in.
today i spent almost $100 on the car. we thought the WW container was leaking but it was actually the pump. so now i think i've fixed every leak there is under the hood.

i got the shingles vaccine today. so far, so good. no reaction.

dear Judy and all,

been busy here as my mom has been in and out of the hospital the last
couple of weeks....they believe it was a severe allergic reaction to two
antibiotics they put her on to deal with a staph infection.


She has been off both meds since last Tuesday so I was hoping she
would be doing better than she is.

She had some funky numbers on some blood panels and they attributing
that to the drugs...they will draw blood on friday and if there are not
improvements then she will have further testing

So that and the bunch of kids I have at home...I have been darn busy...think
ive lost a few more pounds too.:):o

Thinking of you all. Hugs all around.:hug:.

sox, i'm sorry your mom has been ill. i hope she improves quickly and gets home.

i went to PT this am. she's going to ask the dr for 6 more visits.
she suggests going to a kind of pump at home. it compresses the arm and it should be about 20"/day. i just havn't had luck with the wrapping and the compression garment hurts my arm at the bend. it's also so hot.

then she wants to combine that with some sort of soft tissue work.
my breast still hurts so we hope that will all help. lymphedema is a chronic condition and it won't go away, only be controlled. great! another piece of carp to deal with. i'm so sick of all this. my attitude has taken a dive lately.

i see the "pain dr" tomorrow. i hope he's really into pain mgment. i'll see.

cindy, how's the smelly bot foot working? what adventures have you been on?

i'll report tomorrow on this appt.

*smack*

The bot foot does NOT stink! It ROCKS!

*smack*

Sox, that doth sucketh, it's really hard to see our parents suffering. Hang in there and tell her AMN is praying for her. I have the unlimited minutes plan with God. ;)

Judy, geez, you need more excitement and doctoring. I'm sorry this is giving you such a sucky time of it! Are you serious, 20" a day? Your arm must weigh a ton on top of the pain. :(

I'm getting along, it's way too hot out there for me, I just melt. Today I chose Target for my indoor walk and they had their bloody AC as good as off! I was furious when I found out it is controlled by the district offices (that are probably cool and comfortable).

My skinny girl clothes are feeling a little better, but STILL! Not as loose as they should be. This is ticking me off in a big way!

It's finally cooling down out there now and I need to go shuffle some stuff in the car before bed.

hi cin, it's 20 minutes a day of the machine compressing. maybe twice.
they have to contact me and bring the machine and do the teaching.

ok, i won't make any more stinky jokes about your rocky bot foot. so there!

will check in later. almost time to leave.

hi guys,

sorry i've been awol on my own thread. pain was the issue. makes it hard to sit at the computer.

i had my visit with the pain dr and yes, finally, he's really a pain dr. he's a DO, has 2 board certifications. one of which i can't remember, the other one in pain. he also does injections and has lots of referral info should i need it. i was there an hr and we talked about a lot. some of which i can't articulate. wish i would have taken a friend. maybe next month.

we didn't want to change too much at one time so just made 2 med changes. he told me to take 300mg of lyrica BID (twice a day) instead of 150mg QID (4 times a day). he actually thought that would increase my blood levels and keep them up longer. it's only been 48 hrs and i do believe the nerve pain in my feet/legs is less. and the stabbing pain in my feet is much less.

then he put me on AMRIX. it's a muscle relaxer. i take it an hr after dinner.
he told me to stop the ambien if i sleep on this and miraculously i have. and, i've forgotten my ambien before and i'm miserable. for 2 straight nites i've slept 5-6 hrs straight. woken up and met DM in the hallway and then slept another 2-3 hrs. i've also taken naps and still slept.

he said i couldn't take the ultram with the amrix because of a risk of seizures. but, he said i could take 1-2 percoset/day. i've done that and my pain is better. i had a long massage yesterday but today i feel better. i even went grocery shopping this am.

he affirmed my muscle pain by physical exam. he could feel all the tight muscles. thank God. someone could feel it besides me! he said that i would be 1 of 5% of his pts that he would ok narcotics for. he could try other things also. but, we'll start here.

he also offered me some muscle and SI joint injections but i'm done with being stuck for awhile. then he said something that had me confused. i have to ask more about it when i see him next month. he said that i WOULD be a candidate for the ablation. he didn't seem to agree with the dr that did my prior injections. but, i tabled that for more discussion.

so maybe i'm on my way to being tx'd for all this pain. better than going to my neuro time after time only to get no plan of care.

i'm laying low this wk/e. stuff to do at home.
well, off to watch the BRONCOS play. yay football season!