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Old 07-18-2009, 04:42 PM #1
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Default Judy's Inspiration Alley #3

starting a new thread per request to help save the server.

i'm staying in this wk/e. that terrible pain finally broke. i have no idea why it escalated to such a bad state and why it just broke and i'm feeling better.
i did take 2 percoset and an ativan on thurs and stayed in bed. maybe it just broke the pain cycle like my dr thought.

i got referred and got an appt to a pain dr. the appt is aug 12.

other wise i'm just staying cool. doing stuff around the apt and i'm going to cook a noodle kugel. i have a dermatology appt f/u for the cancer on mon. the guy is from Brooklyn and is also Jewish so i promised him i'd make it the next appt.

hope you all are having a good wk/e. how's your weather?
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Old 07-19-2009, 12:26 PM #2
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Hey everyone. We are home from the Smokey Mountains. I updated on mom in both threads and posted a link to some pics in the Insights thread. I didn't get many since mom took a dive and got sick. What a trip. I'm pretty sure I didn't gain weight since I didn't eat thanks to the stress. Ugh.
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Old 07-19-2009, 06:21 PM #3
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hi sandy,

it's good to know you guys made it home.
con't prayers to your mom.

i stayed in this wk/e. yesterday i did housecleaning stuff. today i made a noodle kugel and cooked one other ground beef dish for dinner. i made a taco recipe. we'll see how it is.

this wk i'll be out every day and thankfully my massage therapist comes back from vacation. my pain is present but under control. i'm medicating prophylactically to try and avoid last wk's episode.

hope your's wk goes well.

weight bad. gained 5lb. but it may come off as easily
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Old 07-20-2009, 06:27 AM #4
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Jeez Louise, Judy! I'm not joking, have you thought at all about canibus for the pain? It does work and it doesn't require a lot to get results; if nothing else, just to help you get a decent night's sleep! I'm sorry this is beating you up so badly, few things are as disturbing as constant pain.

Sandy, what an ordeal on your vacation! But, in the long view, it is most excellent that you were right there when it all happened. Your poor mom sure has had a rough run of it.

I've been eating well and moving a lot more than usual, yet, the muffin top remains (??); but I also have the hormone excuse to fall back on for now. I can wear the skinny girl clothes but not as comfortably as the fat girl size. I just have to keep pushing the envelope!

I have many points of muscle pain as so many are now waking up again after a 6-year hiatus. I'm anxious for them to come back to function and tend to overdo it most days. Since I'm forced to wear socks in summer by the bot foot, I will go to the mall today to get some more and walk about in their A/C until I'm cooked.

I adore the pain! This is the first time that leg has felt anything in years. I even walked on rough, grassy terrain with cane only at PT on Friday. I was pretty scared, but it was grand!
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Old 07-20-2009, 03:50 PM #5
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i'll ask about that at my appt. i see my pcp this wk.
it's legal in CO but still against Federal law, i believe.

i'm tickled that you're doing so well cindy.
have you thought about massage?

my matching bookcase to my desk (chrome, wood & glass) will be put up on Wed. can't wait. i'm going to put my file cabinet on sliders so i can move it.
and the desk and bookcase will be on sliders too. they're the greatest invention.

sandy, hope you're doing ok after your trip.

take care all.
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Old 07-20-2009, 03:54 PM #6
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Holy Guacamoly!! I tried to follow the bread crumbs to your new thread Judy dear, but AMN kept eating them. Whew, I made it.

Wow, so much has gone on w/everyone and I am so out of the loop, as haven't been online much at all.
I will try and read a little more and update, but sure am sorry about all your nasty pain, Judy and of course, your Mother, Sandy. I am aware of all AMN's antics w/the Bot, so don't have to catch up there. She's still as dorky as ever.

Since you asked, dear Judy~ my niece had brain/skull surgery to repair Chiari Malformation and is recuping at home now. She is 35 and like another DD to us. It was very risky/serious surgery and we are all so very thankful that is behind her now.

I am still having the eye/neck pain, but see my Dr on Thurs. I'm like you, as long as I try and keep ahead of the pain, it doesn't seem as harsh, but I had a few days that I felt like cutting my head off. blech!!

What's a noodle kugel? It sounds kinky!! (kidding) ha!

Take care and I'll have some coffee w/AMN's muffin top.

(ka racking self up for one billionth time)
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Old 07-21-2009, 09:02 PM #7
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DM...that is risky. i'm glad she came thru it and is recovering. i wish her well.
i'm sorry about your pain and hope your appt goes well on thurs.

i went to PT this am. my lymphedema is no better so she showed me how to wrap my arm. it almost looks like a cast. stockinette over the entire arm, cotton type wrap over that and ace wrap over that. she included my hand but i need my hand and so i'm starting the wrap at my wrist.

she said i should wear it 24/7 except for showers. i look like the swamp creature's wife! plus, it's hot. and don't ask what i do when i can't wear sleeveless tops. ? i don't know if i can sleep in this but i'll try. i can't duplicate exactly how she wrapped it but i guess it'll do.

a noodle kugel/pudding is made up of this: my mom's recipe is so easy. you mix together the ingredients and put the uncooked noodles in the same bowl. turn it out into a 9 x 13 pan and bake for 1 hr.
some of the ingredients are:

egg noodles, butter, cinnamon, eggs, milk, crushed pineapple, handful of raisins, sugar, vanilla etc. it's a bit on the sweet side but i add less sugar and use skim milk. my family loves it. my niece always requests it when she comes.

if you want the recipe i'll be more specific. we eat it as a substitute for potatoes with a main dish like chicken or brisket.

well, take care. i'll see you tomorrow.
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Old 11-09-2010, 10:22 AM #8
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do others use canibus for pain? I would really like to know. I have thought about this for a long time and am considering it for pain. I have several conditions still present, and I don't want to take opiates by mouth anymore.
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Old 11-09-2010, 05:22 PM #9
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hi virginia,

i don't know enuf about medical marijuana to answer your Q.
i know that others do use it and find relief.
i basically wouldn't like to see marijuana use ok'd for the general public because i think it's a drug and can and often does lead to other drug use.

that's just my opinion.
i guess you'd have to try and see how you feel. my neuro in denver offered it to me but i didn't want to take it.

thanks for checking out my thread.
you might get more responses if you post on the general MS board.
thanks again.
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And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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Old 07-22-2009, 07:01 PM #10
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got back from the dr, again (umph).
he's going to increase my detrol.
he said to stop the crestor in case it's making my muscle pain worse.
he's going to recheck my iron and if it's still low i'll get it IV. he said that low iron could cause muscle pain but i forgot to ask how.

thankfully my massage is tomorrow. it's been 2 whole wks and my body knows it. then fri, sat, sun will be quiet. i think i'll redo my closet.

i got my bookcase put together today. it's perfect. i'm glad i got it. it looks great with the desk and fits in the space perfectly. my copy machine fits perfectly also.

well, i'm going to go listen to the president's talk.
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Judy
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You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
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"DESIDERATA" by Max Ehrmann
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