They're called "catamenial seizures". I know, because I had them myself,
for years. It always happened either the first day of my period, or the
day before my cycle started. And, mine were always grand mals.

I did try to take "the Pill" to stop my period-since I couldn't seem to get
the seizures under control-but the AEDs I take made the "Pill" useless.

Now, having said that, I should tell you that I haven't had anything like
that for several years. Probably because the combination of Keppra and
Dilantin is finally controlling my GMs.

The only thing I can suggest is to have your neuro and your GYN work
together to try to find a solution for you. That's what they had to do
with me-my neuro and my GYN sent messages back and forth trying to
figure out what they could do for me. Eventually, I stopped having the
seizures during my period and then they stopped altogether.

Good luck!

Thank you soooooo much. I'm calling them both today!

You're welcome, Ellie! I'm glad I could help!

Ellie, have you talked to your doctors yet? How did it go?

my 15 yr old started these last year before she got her first period. She has always had E, but last year, and the year prior to her first period, her E got signifignatly worse. she is on three meds, with the VNS. the three days prior to her period, she is almost a catatonic zombie princess. tired as all getalong, and pale as a sheet. Just a complete nightmare. After it starts, she goes back into her regular seizure pattern.

Ovaries, uteruses...who needs em'.

She didn't call me back

That's what I plan to tell my GYN when I meet him/her!!

nice to hear Im not the only one awaiting a call back. or two, or perhaps...three!

I can't wait for menopause...or a hysterectomy, whichever comes first!