Has anyone else been diagnosed with this and if so how did you handle it

Hello and welcome to NeuroTalk!

I had not ever heard of this condition so I looked it up and found this informative website. I'll post it here for those who aren't familiar with it......http://www.veindirectory.org/content...n-syndrome.asp.

I'm sorry I don't know much about it but hopefully someone will come along shortly with some advice.

I've been having pelvic pain on my right side for 8 months. I just had laproscopy exploratory surgery (my obgyn thought I may have endometrosis) and they found varicose veins in my pelvis. I haven't even had my follow up appointment back with her yet, but everything points to PCS. I've looked up treatment options and it all goes back to embolization of those veins. I'm hoping to get some answers when I go for my follow up. I've been in pretty much constant pain for a long time now and it's definitely hard to deal with. Not a lot of info out on the web either. Good luck.